1
00:00:34,802 --> 00:00:40,539
All right, let's talk a little
bit more about you.
2
00:00:40,541 --> 00:00:42,107
You-- Right there.
3
00:00:42,109 --> 00:00:46,445
That's where you're gonna be in,
like, six weeks.
4
00:00:46,447 --> 00:00:48,147
Um...
5
00:00:53,754 --> 00:00:55,988
My number-one focus of purpose
6
00:00:55,990 --> 00:00:59,925
is to share with you who I am
7
00:00:59,927 --> 00:01:04,229
and to...
8
00:01:05,633 --> 00:01:07,299
give you, uh,
9
00:01:07,301 --> 00:01:10,869
as much of myself
as I possibly can
10
00:01:10,871 --> 00:01:12,871
while I can.
11
00:01:12,873 --> 00:01:15,007
And I'm excited.
I'm excited.
12
00:01:15,009 --> 00:01:16,809
I want you to come
sooner than later
13
00:01:16,811 --> 00:01:21,113
so I can still hold you--
14
00:01:21,115 --> 00:01:24,950
Hold you and--
You in my hands and my arms.
15
00:01:24,952 --> 00:01:27,453
and use all that stuff--
16
00:01:27,455 --> 00:01:28,887
Just--
17
00:01:28,889 --> 00:01:31,523
Just love you.
18
00:01:34,395 --> 00:01:37,963
The 6th of October, 2001.
19
00:01:37,965 --> 00:01:41,433
We're heading down to the
OSU-Washington State game
20
00:01:41,435 --> 00:01:43,502
where the game is sold out.
MAN: Homecoming.
21
00:01:43,504 --> 00:01:47,272
Homecoming.
Another beautiful day in...
22
00:01:47,274 --> 00:01:49,475
Spokane, Washington.
23
00:01:51,712 --> 00:01:54,113
[CHUCKLES]
24
00:01:54,115 --> 00:01:56,081
Oh, it's a great day.
25
00:01:56,083 --> 00:01:58,150
Cougs are favored by 10.
26
00:01:58,152 --> 00:02:00,119
Steve doesn't like it.
I like it.
27
00:02:00,121 --> 00:02:01,753
Oh, man, it's a beautiful time.
28
00:02:01,755 --> 00:02:04,289
It's a beautiful time
for the Cougs.
29
00:02:11,332 --> 00:02:14,500
MAN 1:
Steve Gleason has what every
college football coach
30
00:02:14,502 --> 00:02:16,301
is looking for in a linebacker.
31
00:02:16,303 --> 00:02:19,805
MAN 2:
Really, really fast.
Really, really aggressive.
32
00:02:19,807 --> 00:02:22,541
MAN 3:
He may be small
but no one can deny
33
00:02:22,543 --> 00:02:26,678
Steve Gleason's ability to hit.
34
00:02:26,680 --> 00:02:29,181
I think that playing football,
you know, is a great time for
35
00:02:29,183 --> 00:02:32,284
every guy to get out there,
you know, and let out your
aggression
36
00:02:32,286 --> 00:02:34,653
and just kind of be
a free spirit.
37
00:02:34,655 --> 00:02:39,691
Cougar football at its best.
Gleason and me. Two legends.
38
00:02:39,693 --> 00:02:41,493
He pass blocks,
you take a step back.
39
00:02:41,495 --> 00:02:44,429
He run blocks,
bam, you're in there.
40
00:02:44,431 --> 00:02:46,899
For the average college
linebacker, he was too small.
41
00:02:46,901 --> 00:02:50,068
And he was way too small
for the NFL to play linebacker.
42
00:02:50,070 --> 00:02:51,970
He had to work harder,
run harder,
43
00:02:51,972 --> 00:02:54,406
train harder,
just so he could be the guy
44
00:02:54,408 --> 00:02:57,843
that was gonna be on
that 53-man roster.
45
00:02:57,845 --> 00:03:00,145
I'd never seen a guy
cover kicks the way he does.
46
00:03:00,147 --> 00:03:03,448
It takes a certain type of
psyche and mindset to do that.
47
00:03:03,450 --> 00:03:05,884
It's actually kind of a crazy,
sort of loose cannon,
48
00:03:05,886 --> 00:03:08,687
"this guy's obviously got
a few screws loose"
type of mindset.
49
00:03:08,689 --> 00:03:10,956
And that's what made him
so good.
50
00:03:14,795 --> 00:03:18,630
I consider Steve a real Kamikaze
of sorts, you know,
51
00:03:18,632 --> 00:03:21,800
notorious for sticking
his head in there,
52
00:03:21,802 --> 00:03:24,469
totally giving up his body,
tough.
53
00:03:27,107 --> 00:03:29,675
Male reporter:
There are reports
from New Orleans
54
00:03:29,677 --> 00:03:31,410
of people trapped
in buildings
55
00:03:31,412 --> 00:03:33,111
that have come down
around them.
56
00:03:33,113 --> 00:03:36,215
The Superdome became a symbol
of failure and despair.
57
00:03:36,217 --> 00:03:39,985
20,000 refugees lived here
for one miserable week
58
00:03:39,987 --> 00:03:41,920
without power, water,
or sanitation.
59
00:03:43,657 --> 00:03:45,857
[CROWD CHEERING]
60
00:03:45,859 --> 00:03:49,428
Female reporter:
A beautiful day,
and an unbelievable scene
61
00:03:49,430 --> 00:03:52,831
here inside
the Louisiana Superdome.
62
00:03:52,833 --> 00:03:54,066
[MEN SHOUTING, CHANTING]
63
00:03:54,068 --> 00:03:55,567
Who are we?
Saints!
64
00:03:55,569 --> 00:03:57,169
Are we ready?
[BARKING]
65
00:03:57,171 --> 00:03:59,204
New Orleans!
[BARKING]
66
00:03:59,206 --> 00:04:01,139
[CROWD CHEERING]
67
00:04:01,141 --> 00:04:05,510
Man:
A moment almost unimaginable
13 months ago is here.
68
00:04:06,380 --> 00:04:08,247
Look out! Right through!
69
00:04:08,249 --> 00:04:09,915
A pickoff by Steve Gleason!
70
00:04:09,917 --> 00:04:12,584
And score!
71
00:04:12,586 --> 00:04:15,921
Touchdown! New Orleans!
72
00:04:20,160 --> 00:04:23,762
And for those people who look
to the New Orleans Saints
73
00:04:23,764 --> 00:04:26,999
as something that will
uplift them, uplift this city,
74
00:04:27,001 --> 00:04:32,738
uplift the entire Gulf Region,
they've just had it!
75
00:04:32,740 --> 00:04:35,040
That night, and specifically
Steve blocking the punt,
76
00:04:35,042 --> 00:04:38,110
was, like, a signal
to everybody that not only
is New Orleans back,
77
00:04:38,112 --> 00:04:41,546
but it just felt like
the rebirth of something
really, really big.
78
00:04:50,524 --> 00:04:55,360
[LAUGHS]
Can you effing believe that?
79
00:04:55,362 --> 00:04:57,596
All right, we need
another performance.
80
00:04:57,598 --> 00:04:58,864
Oh, gee!
81
00:04:58,866 --> 00:05:02,534
¶ Back to back
with the Rio Grande ¶
82
00:05:02,536 --> 00:05:04,336
¶ A Christian woman
in the devil's land ¶
83
00:05:04,338 --> 00:05:06,938
¶ She learned the language
and she learned to fight ¶
84
00:05:06,940 --> 00:05:11,543
¶ But she never learned how
to beat the lonely nights ¶
85
00:05:14,348 --> 00:05:17,783
¶ In Lonesome Dove ¶
86
00:05:20,287 --> 00:05:23,055
¶ Lonesome dove ¶
87
00:05:23,057 --> 00:05:26,458
STEVE:
I want to teach you
how to hold the camera.
88
00:05:26,460 --> 00:05:28,894
Okay.
Yeah?
89
00:05:35,035 --> 00:05:37,903
How's that?
Fine.
90
00:05:39,540 --> 00:05:42,341
Are you there?
I'm here.
91
00:05:42,343 --> 00:05:44,376
You don't like to talk
behind the camera?
92
00:05:44,378 --> 00:05:47,646
I'm a filmer,
I'm not a subject.
93
00:05:47,648 --> 00:05:51,116
Yeah, but a good filmer
94
00:05:51,118 --> 00:05:56,455
asks really good questions
to get really good material.
95
00:05:56,457 --> 00:05:58,357
Are you almost done?
96
00:05:59,393 --> 00:06:01,493
Good question.
97
00:06:03,931 --> 00:06:06,298
When I first got to know him,
he plays--
98
00:06:06,300 --> 00:06:07,866
He had long hair
and played for the NFL.
99
00:06:07,868 --> 00:06:10,769
I thought he was gonna be
a complete cheeseball.
100
00:06:10,771 --> 00:06:13,372
But when I met him,
he was perfect.
101
00:06:13,374 --> 00:06:15,941
I thought he was the greatest
thing I've ever met.
102
00:06:15,943 --> 00:06:19,144
He lived in a small house
and didn't have a TV
103
00:06:19,146 --> 00:06:22,647
and drove a truck and was
different than Southern boys,
104
00:06:22,649 --> 00:06:24,516
and he loved to, like,
adventure travel.
105
00:06:24,518 --> 00:06:26,184
I liked to travel
at the time too.
106
00:06:26,186 --> 00:06:29,855
He was this superhero athlete
but also super smart.
107
00:06:29,857 --> 00:06:32,891
He was the best of both worlds,
let's say.
108
00:06:35,362 --> 00:06:37,763
With the kind of person
that Steve is,
109
00:06:37,765 --> 00:06:39,831
he was attracted to
the free spirit of Michel.
110
00:06:39,833 --> 00:06:44,503
the kind of honest bluntness,
uh, willing to try anything,
111
00:06:44,505 --> 00:06:47,172
really no airs about her.
112
00:06:47,174 --> 00:06:48,874
[CROWD CHEERING]
113
00:06:48,876 --> 00:06:51,443
I don't know, you can never
think of Michel settling down.
114
00:06:51,445 --> 00:06:53,111
She was always the life
of the party.
115
00:06:54,314 --> 00:06:56,448
She was always having fun.
116
00:06:56,450 --> 00:06:58,150
Is Michel really
gonna settle down?
117
00:06:58,152 --> 00:06:59,751
Is Michel gonna have kids?
No way.
118
00:06:59,753 --> 00:07:01,853
That's not gonna happen.
119
00:07:05,526 --> 00:07:08,560
STEVE:
No, you gotta try again.
120
00:07:10,397 --> 00:07:12,898
Watch your hams.
121
00:07:20,474 --> 00:07:24,876
As unique as Steve is,
Michel is equally as unique,
122
00:07:24,878 --> 00:07:27,512
and I think she was still
trying to find herself
123
00:07:27,514 --> 00:07:30,148
and didn't know
where she was going.
124
00:07:30,150 --> 00:07:34,119
And I think when she met Steve,
they just started clicking.
125
00:07:39,860 --> 00:07:41,626
And I think it's such
an amazing thing
126
00:07:41,628 --> 00:07:43,228
that both of you said
to me yesterday.
127
00:07:43,230 --> 00:07:45,297
Even if it's pouring rain,
it doesn't matter.
128
00:07:45,299 --> 00:07:48,266
We have each other.
Our family and friends
are gonna be here.
129
00:07:48,268 --> 00:07:51,169
And isn't that, really?
As all us married people know,
130
00:07:51,171 --> 00:07:53,238
it's how we act,
not when things are great--
131
00:07:53,240 --> 00:07:55,874
It's easy to be loving to each
other when things are great.
132
00:07:55,876 --> 00:07:58,543
But how do we act
as a couple together
133
00:07:58,545 --> 00:08:00,312
when things aren't great?
134
00:08:00,314 --> 00:08:02,080
When things are difficult?
135
00:08:03,317 --> 00:08:04,983
[CHEERING]
136
00:08:07,788 --> 00:08:10,689
Bye!
137
00:08:19,900 --> 00:08:23,068
Now I guess we could say
you're officially
a New Orleanean.
138
00:08:23,070 --> 00:08:25,804
You married a local girl, you
live in a historic neighborhood.
139
00:08:25,806 --> 00:08:28,573
Are you a New Orleanean?
It's a city that I love.
140
00:08:28,575 --> 00:08:31,510
I'm very thankful for all that
has come to me through
this city.
141
00:08:31,512 --> 00:08:35,046
Is it okay with you,
the fact that you're kind of
synonymous for one play?
142
00:08:35,048 --> 00:08:36,948
You played nine years
in the NFL.
143
00:08:36,950 --> 00:08:39,918
You were on the Saints team that
won the first-ever playoff game.
144
00:08:39,920 --> 00:08:43,455
Look, if you gotta pick one
thing that you're gonna
be known for,
145
00:08:43,457 --> 00:08:44,789
that is fine with me.
146
00:08:44,791 --> 00:08:47,559
And before we go,
I wanted Steve to wear
147
00:08:47,561 --> 00:08:49,361
his Number 37 jersey
for this segment.
148
00:08:49,363 --> 00:08:52,797
But he won't put it on.
I wear my jersey on the field.
149
00:08:52,799 --> 00:08:54,966
Those days are done.
150
00:09:00,340 --> 00:09:03,542
So I've been having
some strange medical issues
151
00:09:03,544 --> 00:09:06,845
going on with me recently.
152
00:09:06,847 --> 00:09:10,148
I've been having some
muscle twitching in my arms.
153
00:09:10,150 --> 00:09:14,553
Mostly my upper arms,
shoulders on both sides.
154
00:09:14,555 --> 00:09:16,855
And some in my chest,
155
00:09:16,857 --> 00:09:19,691
in my back,
a little bit in my upper legs.
156
00:09:19,693 --> 00:09:22,193
I then also talked
to my naturopath,
157
00:09:22,195 --> 00:09:25,964
and he seemed a little bit
concerned about it.
158
00:09:25,966 --> 00:09:29,301
He spoke about these types
of symptoms on three levels.
159
00:09:29,303 --> 00:09:32,103
It could be some type
of molecular problem,
160
00:09:32,105 --> 00:09:35,106
or it could be some type
mechanical problem,
161
00:09:35,108 --> 00:09:38,743
meaning my neck or my head
have some type of trauma.
162
00:09:38,745 --> 00:09:42,080
I have a bulging disc
or a ruptured disc
163
00:09:42,082 --> 00:09:44,516
or calcification
in my vertebrae
164
00:09:44,518 --> 00:09:46,151
from all my football trauma.
165
00:09:46,153 --> 00:09:51,156
Thirdly, it could be some
type of neurological disease,
166
00:09:51,158 --> 00:09:53,692
a disease that he mentioned
as--
167
00:09:53,694 --> 00:09:56,528
Obviously the worst-case
scenario would be ALS,
168
00:09:56,530 --> 00:09:58,697
which is Lou Gehrig's disease.
169
00:10:07,374 --> 00:10:10,308
I have been diagnosed with
amyotrophic lateral sclerosis,
170
00:10:13,680 --> 00:10:19,017
which is a disease
in the motor neurons.
171
00:10:32,966 --> 00:10:37,168
And this disease is--
Is almost always fatal.
172
00:10:41,141 --> 00:10:44,542
My first reaction was
kind of frustration or anger
173
00:10:44,544 --> 00:10:46,645
at the doctor for saying it.
174
00:10:46,647 --> 00:10:49,681
And I just was like,
there's no-- There's no way.
175
00:10:49,683 --> 00:10:54,052
He's telling me this,
but I don't necessarily
believe what he's saying.
176
00:11:11,338 --> 00:11:13,471
Although this is part
of the challenge,
177
00:11:13,473 --> 00:11:15,807
like, yeah, I wanna beat ALS,
178
00:11:15,809 --> 00:11:18,043
I want to win that part
of the game,
179
00:11:18,045 --> 00:11:20,378
But for me, the biggest
part of the game is
180
00:11:20,380 --> 00:11:23,715
beating all the other shit that
you and I have talked about is
181
00:11:23,717 --> 00:11:26,651
karma from our parents
182
00:11:26,653 --> 00:11:30,689
or relationships with family
183
00:11:30,691 --> 00:11:33,458
or relationships with friends
184
00:11:33,460 --> 00:11:35,894
or your own spirituality
185
00:11:35,896 --> 00:11:37,796
and just peace in your heart.
186
00:11:37,798 --> 00:11:39,731
But I just think
there's a bigger
187
00:11:39,733 --> 00:11:41,633
battle there
188
00:11:41,635 --> 00:11:44,869
about being able to say,
189
00:11:44,871 --> 00:11:48,406
"Okay, I have been--
I have this diagnosis,
190
00:11:48,408 --> 00:11:53,478
and it's not gonna--
It's not gonna crush my life,
191
00:11:53,480 --> 00:11:57,382
even if it does crush,
you know, crush my body."
192
00:12:02,956 --> 00:12:06,324
I think you look
really cute today.
193
00:12:06,326 --> 00:12:09,861
I haven't smelled you,
but you look really cute.
194
00:12:13,100 --> 00:12:15,700
STEVE:
I wish I could
zoom in on that.
195
00:12:15,702 --> 00:12:18,136
Damn.
196
00:12:19,706 --> 00:12:21,439
Is it hard not to tell?
I know it's a boy.
197
00:12:24,010 --> 00:12:27,011
STEVE: And I know it's a girl.
[CHUCKLES]
198
00:12:27,013 --> 00:12:31,583
But I know more.
Yeah... right.
199
00:12:31,585 --> 00:12:33,284
Before this,
we wanted a baby,
200
00:12:33,286 --> 00:12:35,887
and after this,
just because it meant that
201
00:12:35,889 --> 00:12:38,289
I'd have to help
take care of him.
202
00:12:38,291 --> 00:12:41,326
It wasn't a big enough reason
not to have a baby with him
203
00:12:41,328 --> 00:12:44,863
and have all the beautiful
things that having a baby,
204
00:12:44,865 --> 00:12:47,031
you know, bring to a family
and a couple.
205
00:12:47,033 --> 00:12:50,001
Here you go, Steve-O.
206
00:12:50,003 --> 00:12:52,237
It's definitely in there.
207
00:13:08,688 --> 00:13:10,188
What is this all about?
208
00:13:10,190 --> 00:13:15,193
I am making a video blog
of myself.
209
00:13:15,195 --> 00:13:19,831
This is intended to be
a gift for you,
210
00:13:19,833 --> 00:13:24,002
my child
who I have not yet met.
211
00:13:24,004 --> 00:13:27,172
MICHEL:
Do you think it already has
a hard head?
212
00:13:27,174 --> 00:13:31,209
WOMAN: It could.
That comes from his dad's side.
213
00:13:34,481 --> 00:13:36,514
My intention is to pass on
as much of who I am
214
00:13:38,552 --> 00:13:40,552
as possibly can to you.
215
00:13:40,554 --> 00:13:42,520
And I think if I can do that
in a good way,
216
00:13:43,757 --> 00:13:45,857
it can be even more meaningful
217
00:13:45,859 --> 00:13:48,159
than having
a father who's around
218
00:13:48,161 --> 00:13:52,096
for 30 or 50 or 60 years
of your life.
219
00:13:52,098 --> 00:13:53,965
Now, I hope that happens too,
220
00:13:53,967 --> 00:13:58,570
but this is a nice little
backup insurance plan.
221
00:14:04,177 --> 00:14:06,778
For me, the weird thing is--
The scary thing is, like,
222
00:14:06,780 --> 00:14:10,148
every week or so
there's a new thing
223
00:14:10,150 --> 00:14:13,551
where I'm like,
"Oh, I can't do that."
224
00:14:13,553 --> 00:14:16,354
I'm losing that.
I lost that, just lost that."
225
00:14:17,958 --> 00:14:19,691
[MAN SHOUTING]
226
00:14:19,693 --> 00:14:23,962
We have to have
a pregnant woman to start us.
227
00:14:23,964 --> 00:14:26,798
Is there any pregnant women
in the house?
228
00:14:26,800 --> 00:14:28,900
We got one pregnant woman!
229
00:14:28,902 --> 00:14:31,202
Well, get in, girl,
you're the starter.
230
00:14:31,204 --> 00:14:33,938
On your marks.
MAN: Here we go.
231
00:14:33,940 --> 00:14:36,474
Get set.
We're set!
232
00:14:36,476 --> 00:14:40,044
Go! Go, go, go.
233
00:14:46,486 --> 00:14:50,421
Not everybody knew
that Steve had ALS.
234
00:14:50,423 --> 00:14:55,326
They were treating him
like was still a healthy
ex-football player.
235
00:15:16,116 --> 00:15:17,882
I hadn't cried, I think,
in a long time.
236
00:15:17,884 --> 00:15:20,218
It's just kind of like,
this is gonna be okay.
237
00:15:20,220 --> 00:15:22,754
But seeing that kind of,
like, awkward gait,
238
00:15:22,756 --> 00:15:24,589
it crushed me.
239
00:15:24,591 --> 00:15:26,958
[PEOPLE SHOUTING]
240
00:15:34,701 --> 00:15:37,635
Yeah, buddy!
You did it!
241
00:15:57,691 --> 00:16:00,858
Stretch! Stretch.
242
00:16:00,860 --> 00:16:03,161
Stretch.
243
00:16:03,163 --> 00:16:04,696
[SPEAKING INDISTINCTLY]
Good job, dude.
244
00:16:08,535 --> 00:16:12,236
No one knows what
I'm feeling right now.
245
00:16:12,238 --> 00:16:13,871
I don't want want him
to go through this.
246
00:16:13,873 --> 00:16:15,940
I don't want to deal with this.
For the first time,
247
00:16:15,942 --> 00:16:18,176
you don't want to realize
that this is the truth.
248
00:16:18,178 --> 00:16:20,211
And in those moments
you realize it's the truth,
249
00:16:20,213 --> 00:16:23,014
and, like, this is fucking
happening to my husband.
250
00:16:23,016 --> 00:16:25,483
This is happening.
251
00:16:29,856 --> 00:16:32,824
STEVE:
I think the big question is,
"Why is this happening?"
252
00:16:32,826 --> 00:16:34,959
You know, me and Michel
are so good together.
253
00:16:34,961 --> 00:16:39,464
We're so perfect,
being really good people.
254
00:16:39,466 --> 00:16:42,567
So I kept asking
over and over again,
255
00:16:42,569 --> 00:16:46,137
"God, if you have some
control over this universe,
256
00:16:46,139 --> 00:16:47,705
"why would this happen to me?
257
00:16:47,707 --> 00:16:50,241
"If you have control over this,
258
00:16:50,243 --> 00:16:52,243
"then save me, you know.
Help heal me.
259
00:16:52,245 --> 00:16:54,612
Because I don't want Michel
to be here by herself."
260
00:16:54,614 --> 00:16:57,115
[OVERLAPPING CHATTER]
261
00:16:59,386 --> 00:17:02,820
I'm sure there are people
that get this diagnosis
262
00:17:02,822 --> 00:17:05,556
and just kind of shut down,
263
00:17:05,558 --> 00:17:10,361
whereas it's kind of ignited
a fire in me
264
00:17:10,363 --> 00:17:12,463
where I'm not gonna shut down.
265
00:17:12,465 --> 00:17:14,265
Not only am I not
gonna shut down,
266
00:17:14,267 --> 00:17:17,935
I'm gonna go a little bit
further, you know?
267
00:17:17,937 --> 00:17:20,705
Push the envelope a little bit.
268
00:17:37,524 --> 00:17:38,523
[WHOOPING]
269
00:17:38,525 --> 00:17:40,458
¶ Yes, I understand ¶
270
00:17:40,460 --> 00:17:42,360
¶ That every life must end ¶
271
00:17:42,362 --> 00:17:44,595
¶ Uh, huh ¶
272
00:17:44,597 --> 00:17:48,032
MICHEL: Hell, yeah!
Hell, yeah!
273
00:17:48,034 --> 00:17:51,135
Halleluiah!
MICHEL: Yahoo!
274
00:17:51,137 --> 00:17:53,738
¶ Uh, huh ¶
275
00:17:55,442 --> 00:17:57,608
¶ Oh, I'm a lucky man ¶
276
00:17:57,610 --> 00:17:59,811
¶ To count on both hands ¶
277
00:17:59,813 --> 00:18:02,180
¶ The ones I love ¶
278
00:18:04,117 --> 00:18:05,683
¶ Some folks just have one ¶
279
00:18:05,685 --> 00:18:08,219
You know, I was torn.
A lot of people were saying
280
00:18:08,221 --> 00:18:09,821
I shouldn't necessarily
go on this trip.
281
00:18:09,823 --> 00:18:14,659
I should be seeking out ways
that I can get healed
282
00:18:14,661 --> 00:18:16,360
or get some treatment.
283
00:18:16,362 --> 00:18:19,897
In the end,
I think I decided that
284
00:18:19,899 --> 00:18:21,833
the odds of me finding
some type of treatment
285
00:18:21,835 --> 00:18:23,801
in the next six months
were too small.
286
00:18:25,738 --> 00:18:27,805
It's gotten a lot harder
for me to do stuff.
287
00:18:29,876 --> 00:18:32,910
The other thing that's really
frustrating for me
288
00:18:32,912 --> 00:18:34,645
is the talking.
289
00:18:34,647 --> 00:18:38,316
So it's getting harder
for me to talk.
290
00:18:38,318 --> 00:18:41,586
I know I've said this
before on film,
291
00:18:41,588 --> 00:18:44,622
but it's not gonna stop,
I guess.
292
00:18:44,624 --> 00:18:47,859
It's probable
that it won't stop.
293
00:18:49,929 --> 00:18:53,598
¶ Hold me till I die ¶
294
00:18:53,600 --> 00:18:58,269
¶ Meet you on the other side ¶
295
00:18:59,772 --> 00:19:02,573
Quite possibly one of the
coolest things I've ever done.
296
00:19:02,575 --> 00:19:06,043
We've been, what,
around the world,
297
00:19:06,045 --> 00:19:08,379
and in front of millions
of people,
298
00:19:08,381 --> 00:19:12,216
but that plane flight
was amazing.
299
00:19:12,218 --> 00:19:14,519
MICHEL:
Glacier landing
versus punt block.
300
00:19:14,521 --> 00:19:17,788
I don't know, it's close.
301
00:19:17,790 --> 00:19:20,925
MICHEL:
Want to tell the baby anything?
302
00:19:22,662 --> 00:19:25,496
We had a destination in mind
when we came up here,
303
00:19:25,498 --> 00:19:28,366
and I would say we are there.
304
00:19:28,368 --> 00:19:30,868
Be present now, right?
305
00:19:30,870 --> 00:19:32,403
Better late than never.
306
00:19:32,405 --> 00:19:34,705
Better now than never.
307
00:19:34,707 --> 00:19:36,440
Better now than never.
308
00:19:36,442 --> 00:19:39,844
MAN 1: Yeah. Yeah.
MAN 2: Talking?
309
00:19:41,014 --> 00:19:43,281
Sorry.
310
00:19:43,283 --> 00:19:45,883
My favorite part is
to do things like this.
311
00:19:45,885 --> 00:19:48,653
Hello. Hello.
312
00:19:48,655 --> 00:19:52,456
Hey, how are you?
Oh, how are you now?
313
00:19:52,458 --> 00:19:58,196
Well, things changed since
you're here to now.
314
00:19:59,098 --> 00:20:01,465
Nothing has changed for me.
315
00:20:01,467 --> 00:20:05,069
It's a couple seconds.
For you, though? Huh?
316
00:20:05,071 --> 00:20:07,238
Things have changed.
317
00:20:15,181 --> 00:20:17,615
Like, it's weird
318
00:20:17,617 --> 00:20:20,418
that I'm potentially having
a conversation,
319
00:20:20,420 --> 00:20:22,753
initiating a conversation,
320
00:20:22,755 --> 00:20:26,157
with someone who I actually
might never talk to
321
00:20:26,159 --> 00:20:28,626
in a real conversation.
Mm-hmm.
322
00:20:28,628 --> 00:20:31,229
The baby will be born
in November.
323
00:20:31,231 --> 00:20:33,064
So I'll talk to it, sure.
324
00:20:33,066 --> 00:20:38,002
But let's say a real
conversation starts
at 4 years old.
325
00:20:38,004 --> 00:20:41,839
Maybe I'm not having
conversations at that point.
326
00:20:43,109 --> 00:20:44,942
It's fucked up.
327
00:20:49,048 --> 00:20:50,248
So then it's like,
328
00:20:50,250 --> 00:20:55,686
well, if I was that person...
329
00:20:55,688 --> 00:20:58,856
what would I want
to hear people say?
330
00:20:58,858 --> 00:21:03,828
What would I want to hear
my dad say?
331
00:21:03,830 --> 00:21:07,832
You know?
You just want him to be real.
332
00:21:07,834 --> 00:21:12,870
Yeah, so that's why I'm like,
"Look this is just raw and...
333
00:21:14,741 --> 00:21:16,474
unprepared--
334
00:21:16,476 --> 00:21:18,342
I mean, the same shit
335
00:21:18,344 --> 00:21:22,813
we want when our dads are alive.
336
00:21:22,815 --> 00:21:26,150
We dislike what
so many parents do
337
00:21:26,152 --> 00:21:28,853
is like, "I'm parent now.
338
00:21:28,855 --> 00:21:30,321
"I'm not a person anymore.
339
00:21:30,323 --> 00:21:31,956
"I'm not real.
Yeah.
340
00:21:31,958 --> 00:21:36,427
"I don't have all the exact
same flaws as you.
341
00:21:36,429 --> 00:21:41,732
...doing the exact same stupid
shit that you're doing."
342
00:21:43,636 --> 00:21:47,672
The big thing that's happened
since I've been diagnosed
343
00:21:47,674 --> 00:21:51,475
in January is that one thing
I want to accomplish
344
00:21:51,477 --> 00:21:55,012
is to have all my
relationships in order
345
00:21:55,014 --> 00:21:58,049
is the term I've been using.
346
00:21:58,051 --> 00:22:02,853
In my teenage years,
my dad was very protective.
347
00:22:02,855 --> 00:22:06,223
His only way to teach
how to live life
348
00:22:06,225 --> 00:22:09,593
was to teach it
out of fear.
349
00:22:09,595 --> 00:22:12,029
STEVE:
As much as possible,
try not twist like that.
350
00:22:13,566 --> 00:22:16,133
You got all
your questions there?
351
00:22:16,135 --> 00:22:17,868
Yeah.
That's good.
352
00:22:17,870 --> 00:22:23,941
So I think a good place
to start, Dad, would be--
353
00:22:23,943 --> 00:22:25,710
How about your birth?
354
00:22:25,712 --> 00:22:29,413
Yeah, the very
first memory of me
355
00:22:29,415 --> 00:22:31,782
as a very young child.
356
00:22:31,784 --> 00:22:33,784
What were some of
the things that you remember?
357
00:22:33,786 --> 00:22:35,586
Is that thing on?
Yeah.
358
00:22:35,588 --> 00:22:39,256
It can hear what
you just asked me?
359
00:22:39,258 --> 00:22:40,958
Yeah.
Okay.
360
00:22:50,269 --> 00:22:52,103
He was a reader,
pretty cerebral.
361
00:22:52,105 --> 00:22:56,807
He wasn't an introvert, but he
was more on the quiet side,
362
00:22:56,809 --> 00:22:58,709
I can remember he was
about 6 years old,
363
00:22:58,711 --> 00:23:00,911
and I had him in the backyard.
364
00:23:00,913 --> 00:23:03,681
He was at the farthest end
of the lot in the backyard.
365
00:23:03,683 --> 00:23:06,650
I bought him a Wiffle ball
and a bat.
366
00:23:06,652 --> 00:23:09,920
I said,
"Keep your eye on the ball,
367
00:23:09,922 --> 00:23:12,156
and watch the ball hit
the bat."
368
00:23:12,158 --> 00:23:13,557
So I tossed it to him.
369
00:23:13,559 --> 00:23:15,326
First time he swung the bat.
370
00:23:15,328 --> 00:23:16,827
He hit the ball over the house.
371
00:23:16,829 --> 00:23:19,530
And we're talking
plastic Wiffle ball.
372
00:23:19,532 --> 00:23:23,434
And I thought, "Holy crap.
What do I have here?
373
00:23:25,538 --> 00:23:28,539
Our parents got divorced
when I was 15,
374
00:23:28,541 --> 00:23:30,841
and you were 11 maybe?
Something like that.
375
00:23:30,843 --> 00:23:33,911
And so growing up,
what I remember
376
00:23:33,913 --> 00:23:36,414
is that they would fight
all the time.
377
00:23:36,416 --> 00:23:37,915
A lot of verbal abuse.
378
00:23:37,917 --> 00:23:43,487
Our parents literally
screamed at each other
379
00:23:43,489 --> 00:23:46,724
for hours, just like screaming
as loud as they could
380
00:23:46,726 --> 00:23:48,125
for hours and hours and hours.
381
00:23:50,196 --> 00:23:54,632
There reached a point between
Mike and I where things got
pretty bad
382
00:23:54,634 --> 00:23:58,469
and the boys
did not like that,
383
00:23:58,471 --> 00:24:01,705
especially when I started
going to therapy
384
00:24:01,707 --> 00:24:05,676
and learning how to stand up
for myself again.
385
00:24:05,678 --> 00:24:08,446
Then that got pretty tense.
386
00:24:10,983 --> 00:24:15,586
I didn't have experience
in how to raise somebody.
387
00:24:15,588 --> 00:24:17,655
My father was never home
when I grew up.
388
00:24:17,657 --> 00:24:22,726
So I didn't really have
an example of how a father
should be.
389
00:24:22,728 --> 00:24:25,696
So I was just doing
the best I could do.
390
00:24:25,698 --> 00:24:27,531
I probably over pushed
in some areas
391
00:24:27,533 --> 00:24:30,968
just because I just saw
a lot of talent there
392
00:24:30,970 --> 00:24:33,404
and somebody that had
fierce determination.
393
00:24:33,406 --> 00:24:34,939
So I thought, well,
394
00:24:34,941 --> 00:24:37,842
there's a lot
this kid can do.
395
00:24:39,412 --> 00:24:43,481
And here come the Cougars!
396
00:24:44,550 --> 00:24:47,651
MAN:
There's Stephen right there.
397
00:24:47,653 --> 00:24:49,053
When you saw--
398
00:24:49,055 --> 00:24:51,722
How the interaction was
as a family--
399
00:24:51,724 --> 00:24:56,327
And things weren't right
between your mom and I--
400
00:24:56,329 --> 00:25:00,231
That you can take all that
frustration out on the field.
401
00:25:00,233 --> 00:25:02,199
And it was a great way
for you to release
402
00:25:03,236 --> 00:25:06,937
pain, anger, uh...
403
00:25:06,939 --> 00:25:09,006
And I hate to say it,
but that was
404
00:25:09,008 --> 00:25:11,041
one of my motivations
when I played ball.
405
00:25:11,043 --> 00:25:14,512
'Cause my own life
with my parents
406
00:25:14,514 --> 00:25:16,180
was pretty dysfunctional.
407
00:25:16,182 --> 00:25:20,584
And you grew up in a pretty
dysfunctional marriage.
408
00:25:23,322 --> 00:25:27,825
STEVE:
The biggest thing my dad
has contributed to me
409
00:25:27,827 --> 00:25:33,764
is just determination,
perseverance. Hard work.
410
00:25:33,766 --> 00:25:36,867
I mean, the guy
to a fault, he works hard.
411
00:25:38,971 --> 00:25:43,474
I ended up in a 12-step
recovery program
412
00:25:43,476 --> 00:25:47,778
for workaholism and anxiety.
413
00:25:50,583 --> 00:25:53,751
This a biblical principal
414
00:25:53,753 --> 00:25:56,654
and it's in the Old Testament,
but it says,
415
00:25:56,656 --> 00:26:00,024
when the kings
and their sons would sin,
416
00:26:00,026 --> 00:26:02,493
the generational sin
417
00:26:02,495 --> 00:26:04,962
would go from one family
to the next
418
00:26:04,964 --> 00:26:08,566
unless somebody in the family
419
00:26:08,568 --> 00:26:10,000
would get before the Lord
and say,
420
00:26:10,002 --> 00:26:13,604
"Okay, God,
forgive me for this."
421
00:26:13,606 --> 00:26:16,440
I'm not doing this anymore."
422
00:26:16,442 --> 00:26:18,042
Somebody has to stop the sin
423
00:26:18,044 --> 00:26:22,680
or else that sin runs
from one family to the next.
424
00:26:27,486 --> 00:26:30,955
Okay, a topic based blog here.
425
00:26:30,957 --> 00:26:33,657
Today's topic will be religion.
426
00:26:33,659 --> 00:26:38,562
God. I don't believe God
is a father figure
427
00:26:38,564 --> 00:26:41,565
white-haired man up in heaven.
428
00:26:41,567 --> 00:26:44,768
I don't believe in the fear
429
00:26:44,770 --> 00:26:46,170
that is in the bible.
430
00:26:46,172 --> 00:26:48,372
The fear tactics
that are used in the bible.
431
00:26:48,374 --> 00:26:49,974
I believe in love.
432
00:26:49,976 --> 00:26:53,544
Treating someone else
as you would like to be treated
433
00:26:53,546 --> 00:26:57,548
is my number-one...
434
00:26:57,550 --> 00:26:59,383
rule.
435
00:26:59,385 --> 00:27:03,087
The more I pray,
and the more I read
about this stuff,
436
00:27:03,089 --> 00:27:05,856
the more I believe
God wants me here.
437
00:27:05,858 --> 00:27:09,126
Now, wait a minute,
if that doesn't happen,
438
00:27:09,128 --> 00:27:11,362
I can accept that.
Okay.
439
00:27:11,364 --> 00:27:16,834
The more I hear you saying,
God wants to heal you.
440
00:27:16,836 --> 00:27:18,869
God wants to heal you,
and I'm like, hmm,
441
00:27:18,871 --> 00:27:23,674
that's interesting because
it says in the bible
that we don't know God's mind.
442
00:27:23,676 --> 00:27:26,877
No, that's not true.
It does say that though.
443
00:27:27,947 --> 00:27:31,382
So are you saying
that since I'm--
444
00:27:31,384 --> 00:27:32,783
I'm not saying--
445
00:27:32,785 --> 00:27:34,885
Since I'm sick
and if I die it's because
446
00:27:34,887 --> 00:27:36,353
I don't have the mind of Christ?
447
00:27:36,355 --> 00:27:39,323
I'm not saying that at all.
448
00:27:39,325 --> 00:27:41,659
I would never say that.
449
00:27:44,196 --> 00:27:46,997
Never.
450
00:27:46,999 --> 00:27:50,868
I'm feeling open
and a little bit
anxious and nervous.
451
00:27:50,870 --> 00:27:55,673
How are you feeling?
About the same.
452
00:27:55,675 --> 00:27:57,775
About the same.
453
00:28:03,983 --> 00:28:06,950
Let's give Kevin a warm welcome.
454
00:28:06,952 --> 00:28:09,753
[CHEERING, APPLAUSE]
455
00:28:13,192 --> 00:28:15,259
It's a privilege
to be back here again.
456
00:28:15,261 --> 00:28:18,729
I think we were here
about three years ago,
wasn't it?
457
00:28:18,731 --> 00:28:20,397
Four years?
Three or four years ago.
458
00:28:22,034 --> 00:28:25,936
When I started reading
that book,
459
00:28:25,938 --> 00:28:28,338
I started feeling
inside of me
460
00:28:28,340 --> 00:28:30,407
that I should lay hands
on my own son,
461
00:28:30,409 --> 00:28:33,110
but I was scared,
just like he was,
462
00:28:33,112 --> 00:28:35,746
because I didn't want it
to not work.
463
00:28:35,748 --> 00:28:36,947
Well, just do it.
464
00:28:36,949 --> 00:28:39,683
[WHISPERING INDISTINCTLY]
465
00:28:39,685 --> 00:28:41,085
We're gonna get there.
466
00:28:41,087 --> 00:28:43,554
This whole thing's
gonna be easier, Michel.
467
00:28:43,556 --> 00:28:45,155
It's gonna take time.
468
00:28:45,157 --> 00:28:48,058
KEVIN:
We're gonna focus
on ourselves right now,
469
00:28:48,060 --> 00:28:50,494
and we're gonna put our hand
on our body parts.
470
00:28:50,496 --> 00:28:52,730
Later, we'll put our hands
on other people.
471
00:28:52,732 --> 00:28:54,164
Later on.
472
00:28:54,166 --> 00:28:56,300
But we'll start here first.
473
00:28:56,302 --> 00:29:00,370
And then I want us to sing
"It's The End of My Pain
As I Know It."
474
00:29:00,372 --> 00:29:03,240
Are you ready?
Let's do it, Kevin.
475
00:29:03,242 --> 00:29:07,845
¶ It's the end of my pain
as I know it ¶
476
00:29:07,847 --> 00:29:09,446
¶ It's the end of my pain
as I know it ¶
477
00:29:12,585 --> 00:29:14,451
¶ It's the end of my pain
as I know it ¶
478
00:29:17,089 --> 00:29:19,990
¶ And I feel fine ¶
479
00:29:19,992 --> 00:29:21,759
KEVIN:
Okay, now, check your body out.
480
00:29:21,761 --> 00:29:23,293
Try to make it heard.
481
00:29:23,295 --> 00:29:26,497
Try to do something
that you couldn't do before.
482
00:29:26,499 --> 00:29:28,799
I'm gonna go run.
See if there's 10 percent,
483
00:29:28,801 --> 00:29:30,467
20 percent, 30 percent
difference,
484
00:29:31,704 --> 00:29:34,037
50 percent,
100 percent improvement,
485
00:29:34,039 --> 00:29:35,506
some kind of improvement.
486
00:29:35,508 --> 00:29:37,274
Come on, try to make it heard
real quick.
487
00:29:37,276 --> 00:29:39,676
Now, wave your hand if you had
some kind of improvement.
488
00:29:39,678 --> 00:29:42,412
Right there. Right here.
Right there. Right over here.
489
00:29:42,414 --> 00:29:45,282
Right back there. Right here.
I'm gonna run.
490
00:29:45,284 --> 00:29:47,985
Okay, go for it. Right here.
I'm gonna run.
491
00:29:47,987 --> 00:29:49,853
Right here. Right there.
Should I run?
492
00:29:49,855 --> 00:29:52,623
Wow! Look at this.
493
00:29:52,625 --> 00:29:55,692
This is awesome.
494
00:29:55,694 --> 00:29:57,728
This is awesome.
Just go do it.
495
00:29:57,730 --> 00:29:59,930
This is-- Go. Just go ahead.
496
00:29:59,932 --> 00:30:02,566
Just check it out.
Try to make it heard right now.
497
00:30:02,568 --> 00:30:05,903
Okay, wave your hand if you've
got some more breakthrough.
498
00:30:05,905 --> 00:30:08,105
Look at this. More.
499
00:30:08,107 --> 00:30:11,809
Okay. All right. Good try.
500
00:30:11,811 --> 00:30:13,811
Here let me have your hand.
501
00:30:13,813 --> 00:30:15,746
Good try.
Try again.
502
00:30:15,748 --> 00:30:17,614
Yeah, that was how many steps?
503
00:30:17,616 --> 00:30:19,616
Four steps.
504
00:30:19,618 --> 00:30:21,251
[APPLAUSE]
505
00:30:22,922 --> 00:30:26,123
Let's get a couple big guys here
as well
506
00:30:26,125 --> 00:30:28,926
and come alongside of him
to run with him.
507
00:30:28,928 --> 00:30:30,561
You're a big guy.
Come on.
508
00:30:30,563 --> 00:30:32,996
You in the blue.
There you go.
509
00:30:36,502 --> 00:30:38,602
Don't touch me.
510
00:30:38,604 --> 00:30:39,803
This is bullshit.
511
00:30:39,805 --> 00:30:42,105
It's not bullshit.
Yes, it is.
512
00:30:42,107 --> 00:30:45,042
So at this point,
what we're gonna do is
513
00:30:45,044 --> 00:30:49,079
these guys are gonna go back
there and practice this
while I continue.
514
00:30:49,081 --> 00:30:52,983
There you go.
Keep up with him.
515
00:30:54,687 --> 00:30:58,589
He's gonna tell you it will
happen when he leaves you.
516
00:30:58,591 --> 00:31:02,459
He said usually things happen
once he's gone.
517
00:31:02,461 --> 00:31:03,694
Just so you know.
518
00:31:03,696 --> 00:31:05,329
MIKE:
Michel, you're his partner.
519
00:31:05,331 --> 00:31:07,497
You need to trust
and believe with him.
520
00:31:07,499 --> 00:31:09,933
You really need to--
She's with me all the way.
521
00:31:09,935 --> 00:31:12,035
I am with him so much,
Mike.
522
00:31:12,037 --> 00:31:14,972
I know you are.
Don't you dare say that to me.
523
00:31:14,974 --> 00:31:17,307
It's okay.
524
00:31:17,309 --> 00:31:20,310
Michel, come on in.
Everybody's different.
525
00:31:20,312 --> 00:31:24,982
WOMAN:
I know. That's what
she just said, though.
526
00:31:40,165 --> 00:31:42,132
I feel sick.
Okay.
527
00:31:42,134 --> 00:31:45,335
The team's gonna come this way
and go past us that way.
528
00:31:45,337 --> 00:31:46,403
Okay.
529
00:31:46,405 --> 00:31:49,606
MAN:
It was a surprise appearance
530
00:31:49,608 --> 00:31:51,041
by Steve Gleason.
531
00:31:51,043 --> 00:31:53,110
His first appearance on camera
532
00:31:53,112 --> 00:31:55,946
since going public
that he had been diagnosed
533
00:31:55,948 --> 00:31:57,781
with ALS.
534
00:31:57,783 --> 00:32:00,717
Obviously, I don't
535
00:32:00,719 --> 00:32:02,920
how to move or talk
536
00:32:02,922 --> 00:32:04,922
quite the way I used to.
537
00:32:10,129 --> 00:32:15,198
When you're good at something,
it's fun to see other people
admire you.
538
00:32:15,200 --> 00:32:19,069
And I think that's a good thing
to be so good at something
539
00:32:19,071 --> 00:32:20,904
that people admire you.
540
00:32:20,906 --> 00:32:24,775
But I think it could be
dangerous if that becomes
obsessive.
541
00:32:24,777 --> 00:32:28,679
And I certainly struggled
with that when I retired.
542
00:32:28,681 --> 00:32:32,683
If you're not doing something
where there's tens of thousands
543
00:32:32,685 --> 00:32:36,186
or millions of people that are
admiring you,
544
00:32:36,188 --> 00:32:40,057
can you still be happy?
545
00:32:40,059 --> 00:32:41,992
Tough question.
546
00:32:41,994 --> 00:32:44,194
It was just prior
to the Saints home game
547
00:32:44,196 --> 00:32:46,129
on September 25th
with the Texans
548
00:32:46,131 --> 00:32:50,267
that Gleason went public
that he had been diagnosed
with ALS.
549
00:32:50,269 --> 00:32:53,236
He was named an honorary captain
for that football game.
550
00:32:53,238 --> 00:32:56,239
and came out at mid-field
to lead a "Who-Dat" chant
551
00:32:56,241 --> 00:33:00,310
that no one will ever forget,
especially Gleason.
552
00:33:04,817 --> 00:33:10,420
STEVE:
When I would play football,
during games, I would have
553
00:33:10,422 --> 00:33:14,558
this fear of walking
onto the football field.
554
00:33:14,560 --> 00:33:16,693
And I would tell myself,
"Hey, if I die today
555
00:33:20,199 --> 00:33:21,698
"or on this play,
then I'm okay.
556
00:33:23,402 --> 00:33:27,070
"I've had a good life,
and I feel good about
557
00:33:27,072 --> 00:33:29,339
kind of accepting death."
558
00:33:31,076 --> 00:33:33,777
At the same time,
I think that
559
00:33:33,779 --> 00:33:38,515
that thought and maybe
the actions that followed it,
560
00:33:38,517 --> 00:33:42,052
sometimes I think that's--
That might be why
561
00:33:42,054 --> 00:33:45,055
I have ended up
where I am right now.
562
00:33:45,057 --> 00:33:50,527
And now I think about it,
and I don't want to die.
563
00:33:50,529 --> 00:33:52,295
[CROWD CHEERING]
564
00:34:09,548 --> 00:34:11,815
[CROWD CHANTING]
WHO-DAT?! WHO-DAT?!
565
00:34:11,817 --> 00:34:13,483
WHO-DAT?! WHO-DAT?!
566
00:34:13,485 --> 00:34:17,287
WHO-DAT SAY
DE GONNA BEAT DEM SAINTS?!
567
00:34:36,642 --> 00:34:38,775
MAN:
So for now,
Gleason's goals are clear.
568
00:34:40,012 --> 00:34:42,179
Live each day to the fullest
569
00:34:42,181 --> 00:34:45,015
and spread the word about ALS.
570
00:34:45,017 --> 00:34:48,185
If I could help show
and inspire people to--
571
00:34:48,187 --> 00:34:53,023
That have been diagnosed
with ALS to continue living
their life,
572
00:34:53,025 --> 00:34:56,226
and if we can,
as a group,
573
00:34:56,228 --> 00:34:59,563
uh, if we could help
those people--
574
00:34:59,565 --> 00:35:02,265
Those people who have been
diagnosed continue to live
575
00:35:02,267 --> 00:35:07,204
a life that's enriching
and extraordinary,
576
00:35:07,206 --> 00:35:10,841
um, then I think, uh,
577
00:35:10,843 --> 00:35:12,375
that's part of my goal.
578
00:35:25,557 --> 00:35:28,191
MAN:
We have to define your purpose.
579
00:35:28,193 --> 00:35:32,362
To me, there's two things
you can do
580
00:35:32,364 --> 00:35:36,967
in terms of medical disease
related fundraising.
581
00:35:36,969 --> 00:35:39,769
Either for research for a cure,
582
00:35:39,771 --> 00:35:44,908
or for services, equipment,
technology, etc.
583
00:35:44,910 --> 00:35:48,845
I chose services and equipment
as opposed to research.
584
00:35:48,847 --> 00:35:50,113
Okay.
585
00:35:50,115 --> 00:35:51,915
I want to accomplish two things.
586
00:35:51,917 --> 00:35:55,619
I want to advance those
587
00:35:55,621 --> 00:35:57,654
technologies, services,
and equipment.
588
00:35:57,656 --> 00:36:01,291
And I'd like to provide people
with purpose.
589
00:36:01,293 --> 00:36:03,193
We had a kid who e-mailed me.
He said,
590
00:36:03,195 --> 00:36:07,697
"I'm 29, I just read your entire
blog about going to Alaska.
591
00:36:07,699 --> 00:36:09,432
"That's been a dream
of mine forever.
592
00:36:09,434 --> 00:36:12,369
I got diagnosed with ALS
two months ago."
593
00:36:12,371 --> 00:36:15,906
My idea is to create ways
for ALS patients,
594
00:36:15,908 --> 00:36:19,976
even if they can't move, to
participate in these projects,
595
00:36:19,978 --> 00:36:21,511
these expeditions.
596
00:36:21,513 --> 00:36:24,814
But that's-- If all goes my way,
597
00:36:24,816 --> 00:36:27,317
that's what I'd like to do
with the money
598
00:36:27,319 --> 00:36:29,786
that we raise
for this foundation.
599
00:36:29,788 --> 00:36:32,756
[CRICKETS CHIRPING]
600
00:36:32,758 --> 00:36:35,892
MAN [OVER SPEAKER]:
Legally, for the formation...
601
00:36:35,894 --> 00:36:38,695
No, no, no.
602
00:36:38,697 --> 00:36:41,698
We do need something
for the foundation.
603
00:36:44,436 --> 00:36:47,270
Yeah, for, so, Jim--
604
00:36:47,272 --> 00:36:49,873
[JIM CONTINUES, INDISTINCTLY]
605
00:36:51,410 --> 00:36:53,577
Thank you so much, guys.
Have a great night.
606
00:36:53,579 --> 00:36:55,545
MAN 1: All right, thanks.
MAN 2: Thanks, bud.
607
00:36:55,547 --> 00:36:57,080
MAN 3:
Late.
608
00:36:57,082 --> 00:36:58,882
That was sweet.
609
00:37:02,120 --> 00:37:04,721
[WATER RUNNING]
Hi.
610
00:37:04,723 --> 00:37:05,922
[MICHEL SPITS]
611
00:37:05,924 --> 00:37:07,857
Good morning.
Hi.
612
00:37:07,859 --> 00:37:10,961
Hey you. I'm sorry.
613
00:37:10,963 --> 00:37:12,362
MICHEL:
That's okay.
614
00:37:12,364 --> 00:37:13,930
STEVE:
I don't know why I did that.
615
00:37:16,101 --> 00:37:17,867
MICHEL:
I don't know either.
616
00:37:17,869 --> 00:37:20,503
STEVE:
You are so important.
You know that.
617
00:37:20,505 --> 00:37:22,973
You are, you're it.
618
00:37:22,975 --> 00:37:25,642
You're, you're it.
619
00:37:25,644 --> 00:37:27,410
You're it.
620
00:37:27,412 --> 00:37:31,181
All that other shit
doesn't matter.
621
00:37:31,183 --> 00:37:32,616
MICHEL:
Okay.
622
00:37:32,618 --> 00:37:35,852
I'm telling you,
I'm serious.
623
00:37:39,324 --> 00:37:40,890
But I am kind of excited
624
00:37:40,892 --> 00:37:44,094
because I think
we could create something here.
625
00:37:44,096 --> 00:37:45,595
Buddy,
I think it's great.
626
00:37:45,597 --> 00:37:46,796
I mean,
I think it's great.
627
00:37:46,798 --> 00:37:49,199
We have a passion,
a project,
628
00:37:49,201 --> 00:37:51,668
something that we have to
live for.
629
00:37:51,670 --> 00:37:54,204
Steve, this is--
That's raw, you know.
630
00:37:54,206 --> 00:37:56,273
This is--
Look, this is--
631
00:37:56,275 --> 00:37:58,008
That is nothing
why I'm crying,
632
00:37:58,010 --> 00:38:00,577
this has nothing
to do with that.
633
00:38:00,579 --> 00:38:01,911
I don't know
why I'm crying.
634
00:38:01,913 --> 00:38:03,580
I want you
to help me create it.
635
00:38:03,582 --> 00:38:06,283
I know. Steve,
I'm here with you in every step.
636
00:38:06,285 --> 00:38:07,784
It's not like I'm not--
637
00:38:07,786 --> 00:38:11,021
I know. I'm just saying
I want you to feel like
638
00:38:11,023 --> 00:38:13,757
we need you to create this.
639
00:38:13,759 --> 00:38:16,126
This is...
640
00:38:16,128 --> 00:38:18,461
There's things that you can get
too involved in,
641
00:38:18,463 --> 00:38:22,599
but I think that this is
great stuff.
642
00:38:24,303 --> 00:38:26,303
The contractions,
I can't even tell,
643
00:38:26,305 --> 00:38:28,271
'cause there's so much pressure
all the time,
644
00:38:28,273 --> 00:38:30,340
and they've moved from
my hernia down to my--
645
00:38:30,342 --> 00:38:31,875
It's go time.
It's go time.
646
00:38:31,877 --> 00:38:33,943
JULIE:
Michel, that is how labor is.
647
00:38:33,945 --> 00:38:35,245
It's not back labor.
648
00:38:35,247 --> 00:38:37,180
Do you have any fluids coming
out at all?
649
00:38:37,182 --> 00:38:41,251
I just had
a tiny little thing
of pink this morning.
650
00:38:41,253 --> 00:38:43,219
Okay. You're in labor!
651
00:38:43,221 --> 00:38:44,554
Julie,
but we don't know yet,
652
00:38:44,556 --> 00:38:46,356
so I don't want to be
one of those people--
653
00:38:46,358 --> 00:38:47,924
Yeah, I know. Okay?
654
00:38:47,926 --> 00:38:49,959
Sarah's sitting right here
and she's like
655
00:38:49,961 --> 00:38:51,695
"She's having a baby."
656
00:38:51,697 --> 00:38:55,231
You're having the baby today.
Steve, are you ready?
657
00:38:55,233 --> 00:38:57,033
No choice.
658
00:38:57,035 --> 00:38:58,935
[JULIE LAUGHING]
659
00:38:58,937 --> 00:39:00,937
No choice.
660
00:39:02,274 --> 00:39:04,507
I'm letting you know
in advance,
661
00:39:04,509 --> 00:39:08,478
it's going to be
very difficult for me,
662
00:39:08,480 --> 00:39:10,413
pushing this thing
out of that little hole.
663
00:39:10,415 --> 00:39:13,817
You're gonna do great.
I'm gonna help you.
664
00:39:16,088 --> 00:39:19,789
There's things in life that
are hard, but you just gotta do.
665
00:39:19,791 --> 00:39:22,826
I know, but do you understand
what's about to happen?
666
00:39:22,828 --> 00:39:25,061
If it happens.
667
00:39:31,303 --> 00:39:33,937
WOMAN:
Michel Varisco.
668
00:39:36,341 --> 00:39:41,911
Well, it's, uh,
October 19, 2011.
669
00:39:41,913 --> 00:39:45,682
We've done several of
these types of journals,
670
00:39:45,684 --> 00:39:49,052
but, uh, it's, uh--
It's go time.
671
00:39:49,054 --> 00:39:52,222
I've been scared about
doing this for my whole life.
672
00:39:52,224 --> 00:39:54,424
[HEART MONITOR]
673
00:39:57,562 --> 00:40:00,997
Come on out,
little buddy.
674
00:40:00,999 --> 00:40:02,665
Come on out.
675
00:40:04,336 --> 00:40:06,603
Oh, sweet Jesus, Steve.
676
00:40:08,407 --> 00:40:10,340
I want a kiss.
677
00:40:10,342 --> 00:40:12,642
You got it.
678
00:40:17,816 --> 00:40:20,683
Michel, I love you so much.
I love you.
679
00:40:20,685 --> 00:40:24,487
And we're doing the--
Really, the coolest thing
we could do together, right?
680
00:40:24,489 --> 00:40:27,056
That's right.
Fuckin' right, dude.
681
00:40:31,530 --> 00:40:34,063
MICHEL:
Dun-da-da-dah!
682
00:40:34,065 --> 00:40:37,367
DOCTOR:
Let's see.
All right, this is it, guys.
683
00:40:37,369 --> 00:40:39,002
There you go.
684
00:40:39,004 --> 00:40:40,503
[INDISTINCT DIALOG]
685
00:40:40,505 --> 00:40:42,138
DOCTOR:
We're gonna do
most of the work.
686
00:40:42,140 --> 00:40:44,374
Give me a deep breath.
Give me a little half push.
687
00:40:44,376 --> 00:40:45,642
There we go.
All right, no more.
688
00:40:45,644 --> 00:40:47,410
Let's go straight up,
Steve. Ready?
689
00:40:47,412 --> 00:40:50,246
Straight up.
Hold right here.
690
00:40:50,248 --> 00:40:51,548
Ready? Watch this.
691
00:40:51,550 --> 00:40:54,083
MICHEL:
He's little. Look at him, Steve.
692
00:40:54,085 --> 00:40:56,219
DOCTOR:
Okay, Michel, look at your baby.
693
00:40:56,221 --> 00:40:58,455
Look at this baby.
Look at that beautiful baby.
694
00:40:58,457 --> 00:40:59,923
All right, Steve,
get your hand here.
695
00:40:59,925 --> 00:41:01,491
We got it, it's okay.
There it is.
696
00:41:01,493 --> 00:41:03,359
We got it.
You got it, I don't have it.
697
00:41:03,361 --> 00:41:04,994
You got it.
You got a baby boy.
698
00:41:04,996 --> 00:41:07,263
[LAUGHING]
You got a baby boy.
699
00:41:07,265 --> 00:41:08,565
Wait, can you hold him?
700
00:41:08,567 --> 00:41:10,500
I got him.
MICHEL: I knew it was a boy.
701
00:41:10,502 --> 00:41:12,168
WOMAN: He's a Rivers.
That's my boy.
702
00:41:13,238 --> 00:41:15,238
[INDISTINCT CHATTER]
703
00:41:19,377 --> 00:41:21,878
I don't know
how to hold him.
704
00:41:21,880 --> 00:41:24,080
I don't--
I don't think that's mine.
705
00:41:24,082 --> 00:41:25,415
You don't?
706
00:41:25,417 --> 00:41:28,151
I mean,
it doesn't even seem real.
707
00:41:28,153 --> 00:41:30,086
[BABY FUSSING]
708
00:41:30,088 --> 00:41:31,454
It was so easy.
709
00:41:31,456 --> 00:41:33,022
WOMAN:
You did it good.
You were great.
710
00:41:33,024 --> 00:41:34,891
STEVE:
Mick, you did great, dude.
711
00:41:34,893 --> 00:41:36,426
I'm ready for number two.
712
00:41:36,428 --> 00:41:37,760
[LAUGHING]
713
00:41:37,762 --> 00:41:39,729
STEVE:
Well, okay.
714
00:41:39,731 --> 00:41:43,399
STEVE:
¶ Rivers and roads ¶
715
00:41:43,401 --> 00:41:46,102
MICHEL:
¶ Rivers and roads ¶
716
00:41:46,104 --> 00:41:49,305
STEVE:
¶ Rivers and roads ¶
717
00:41:49,307 --> 00:41:52,008
That's, uh,
Rivers Varisco Gleason,
718
00:41:52,010 --> 00:41:53,243
your grandson.
719
00:41:53,245 --> 00:41:55,945
Rivers. That's what you
named him, Rivers?
720
00:41:55,947 --> 00:41:57,413
Yep.
721
00:41:57,415 --> 00:41:59,115
What's his middle name?
722
00:41:59,117 --> 00:42:01,618
Varisco.
723
00:42:01,620 --> 00:42:04,587
Oh. Just like her last name.
724
00:42:04,589 --> 00:42:06,556
[LAUGHING]
725
00:42:06,558 --> 00:42:10,026
Rivers Varisco Gleason.
726
00:42:10,028 --> 00:42:11,528
Rivers.
727
00:42:11,530 --> 00:42:12,729
[LAUGHING]
728
00:42:12,731 --> 00:42:14,330
All right.
729
00:42:14,332 --> 00:42:15,832
[LAUGHING]
730
00:42:15,834 --> 00:42:18,535
So are you at
the hospital?
731
00:42:18,537 --> 00:42:21,604
Oh, yeah, dude.
732
00:42:21,606 --> 00:42:26,643
Dad, we had the baby,
like, half an hour ago.
733
00:42:26,645 --> 00:42:28,411
Half an hour ago.
734
00:42:28,413 --> 00:42:30,680
Yeah, man.
735
00:42:30,682 --> 00:42:32,649
What's up, Rivers?
736
00:42:32,651 --> 00:42:35,018
You're right here.
737
00:42:36,254 --> 00:42:39,622
Uh, all right.
738
00:42:39,624 --> 00:42:44,294
October 20, 2011,
739
00:42:44,296 --> 00:42:47,964
and this will be...
740
00:42:47,966 --> 00:42:49,365
[CLEARS THROAT]
741
00:42:49,367 --> 00:42:52,302
...my first video journal
742
00:42:52,304 --> 00:42:55,138
where we're in it together.
743
00:42:55,140 --> 00:42:56,472
How about that?
744
00:42:56,474 --> 00:42:58,274
It's also the first
video journal where
745
00:42:59,511 --> 00:43:02,679
I get to...
746
00:43:02,681 --> 00:43:06,516
talk to you in, what,
the first person
747
00:43:06,518 --> 00:43:10,186
rather than using pronouns.
748
00:43:10,188 --> 00:43:11,921
Uh, I'm scared.
749
00:43:11,923 --> 00:43:15,558
We don't know
what the hell we're doing.
750
00:43:15,560 --> 00:43:19,662
Anyhow, the big thing is,
751
00:43:19,664 --> 00:43:21,898
I'm writing a bunch about
752
00:43:21,900 --> 00:43:23,833
what the word and the name,
753
00:43:23,835 --> 00:43:27,937
and-- And what rivers
actually mean to me.
754
00:43:27,939 --> 00:43:30,440
I came up with this
several years ago,
755
00:43:30,442 --> 00:43:35,745
but I decided that rivers
are the source of fire.
756
00:43:35,747 --> 00:43:37,880
Here's my logic.
757
00:43:37,882 --> 00:43:39,315
A fire burns wood
as its fuel,
758
00:43:41,386 --> 00:43:43,853
and this wood
comes from a tree
759
00:43:43,855 --> 00:43:45,588
that drinks from the rivers,
760
00:43:45,590 --> 00:43:51,661
and so, uh, the rivers
are the fuel for the fire.
761
00:43:51,663 --> 00:43:57,066
And, uh,
you are the rivers...
762
00:43:57,068 --> 00:43:58,968
for my fire.
763
00:44:07,479 --> 00:44:10,880
[Van Morrison's
"Crazy Love" playing]
764
00:44:19,791 --> 00:44:22,759
¶ I can hear
her heart beat ¶
765
00:44:22,761 --> 00:44:26,963
¶ For a thousand miles ¶
766
00:44:26,965 --> 00:44:29,632
¶ And the heavens open ¶
767
00:44:29,634 --> 00:44:32,935
¶ Every time she smiles ¶
768
00:44:32,937 --> 00:44:35,738
¶ And when I come to her ¶
769
00:44:35,740 --> 00:44:39,509
¶ That's where I belong ¶
770
00:44:39,511 --> 00:44:41,911
¶ Yet I'm running to her ¶
771
00:44:41,913 --> 00:44:44,514
¶ Like a river's song ¶
772
00:44:44,516 --> 00:44:46,382
¶ She give me love,
love, love, love ¶
773
00:44:49,220 --> 00:44:51,254
¶ Crazy love ¶
774
00:44:51,256 --> 00:44:55,391
¶ She give me love,
love, love, love ¶
775
00:44:55,393 --> 00:44:57,560
¶ Crazy love ¶
776
00:44:57,562 --> 00:44:59,395
¶ She give me love,
love, love, love ¶
777
00:45:01,733 --> 00:45:04,100
¶ Crazy love ¶
778
00:45:04,102 --> 00:45:08,471
¶ She give me love,
love, love, love ¶
779
00:45:08,473 --> 00:45:10,373
¶ Crazy love ¶
780
00:45:10,375 --> 00:45:15,511
¶ She give me love,
love, love, love ¶
781
00:45:15,513 --> 00:45:19,015
¶ She give me crazy ¶
782
00:45:19,017 --> 00:45:23,086
¶ She drives me
a little crazy ¶
783
00:45:23,088 --> 00:45:26,422
[INDISTINCT DIALOG]
784
00:45:26,424 --> 00:45:29,325
[CHEERING]
785
00:45:29,327 --> 00:45:32,795
Today I'm gonna
talk about, uh...
786
00:45:32,797 --> 00:45:37,366
um, my insecurities.
787
00:45:37,368 --> 00:45:41,304
I think I cared a lot about
what people thought of me,
788
00:45:41,306 --> 00:45:47,143
and, uh, suppose I--
I battle that even today.
789
00:45:47,145 --> 00:45:49,479
Um, ahem,
790
00:45:49,481 --> 00:45:51,447
I wonder sometimes
if I'm doing too much
791
00:45:53,017 --> 00:45:57,153
because people
want me to do a lot.
792
00:45:57,155 --> 00:46:00,022
You know, people are like,
oh, you're a hero, you're--
793
00:46:00,024 --> 00:46:03,659
uh, ahem, you're, uh--
794
00:46:03,661 --> 00:46:05,161
[COUGHS]
795
00:46:05,163 --> 00:46:07,463
you're an inspiration,
so I'm, like, okay,
796
00:46:07,465 --> 00:46:12,301
what can I keep doing to
continue to be an inspiration?
797
00:46:12,303 --> 00:46:15,071
[PHONE RINGS]
798
00:46:15,073 --> 00:46:17,473
Hello.
WOMAN: Hi, is this Michel?
799
00:46:17,475 --> 00:46:20,309
This is she.
Hi, Michel, it's Melanie,
800
00:46:20,311 --> 00:46:23,780
and I am here
with Jim Eutizzi,
801
00:46:23,782 --> 00:46:26,549
and then, um, a couple people
that I work with.
802
00:46:26,551 --> 00:46:29,118
MICHEL:
Oh, okay.
How are y'all doin' today?
803
00:46:29,120 --> 00:46:31,821
Good.
I'm here with my husband Steve,
804
00:46:31,823 --> 00:46:33,456
and our baby Rivers.
805
00:46:33,458 --> 00:46:35,491
And we've got a, uh--
A message to give Jim.
806
00:46:36,628 --> 00:46:39,028
[BABY BABBLING]
807
00:46:39,030 --> 00:46:40,797
That was from Rivers.
808
00:46:40,799 --> 00:46:42,732
That was hello
from Rivers.
809
00:46:42,734 --> 00:46:46,602
And from us, uh,
we wanted to let Jim know,
810
00:46:46,604 --> 00:46:49,572
well, ask him if
he'd like to, uh--
811
00:46:49,574 --> 00:46:51,107
To go to Italy with his son,
812
00:46:51,109 --> 00:46:52,942
because we've already
bought him tickets
813
00:46:52,944 --> 00:46:56,479
for about 12 days in June.
814
00:46:56,481 --> 00:46:58,915
Here are your tickets.
815
00:46:58,917 --> 00:47:00,917
[SOBBING]
816
00:47:07,859 --> 00:47:11,194
Okay, Michel.
817
00:47:11,196 --> 00:47:12,995
Well, does he
want to go or not?
818
00:47:12,997 --> 00:47:14,564
MELANIE:
You want to go, right?
819
00:47:14,566 --> 00:47:18,634
Oh, God.
820
00:47:18,636 --> 00:47:22,438
I don't know what to say.
821
00:47:22,440 --> 00:47:25,775
That is so awesome,
Melanie.
822
00:47:25,777 --> 00:47:28,244
[INDISTINCT DIALOG]
823
00:47:28,246 --> 00:47:31,280
I don't know what to say.
824
00:47:38,022 --> 00:47:39,522
Hi, this is Kurt Warner,
825
00:47:39,524 --> 00:47:41,057
and I support Team Gleason.
826
00:47:41,059 --> 00:47:42,458
No white flags, baby.
827
00:47:42,460 --> 00:47:44,660
Hi, I'm John Elway
for Team Gleason.
828
00:47:44,662 --> 00:47:45,895
No white flags.
829
00:47:45,897 --> 00:47:47,129
I'm Reverend Jesse Jackson.
830
00:47:47,131 --> 00:47:50,132
I support Team Gleason.
No white flags.
831
00:47:50,134 --> 00:47:53,069
I'm Mike McCready,
832
00:47:53,071 --> 00:47:57,273
badass guitarist for
the greatest rock band ever,
833
00:47:57,275 --> 00:47:58,875
Pearl Jam.
834
00:47:58,877 --> 00:48:01,244
Hey, I'm--
I'm Steve Gleason.
835
00:48:01,246 --> 00:48:03,346
I'm a totally incredible
human being
836
00:48:03,348 --> 00:48:06,415
doing fantastic work
with Team Gleason.
837
00:48:06,417 --> 00:48:08,918
Always remember.
Always remember,
838
00:48:08,920 --> 00:48:10,920
BOTH:
no white flags.
839
00:48:12,824 --> 00:48:14,991
[NO AUDIBLE DIALOG]
840
00:48:14,993 --> 00:48:17,026
STEVE:
It's my belief that
841
00:48:17,028 --> 00:48:19,795
most of what ALS takes away
from people,
842
00:48:19,797 --> 00:48:22,231
technology can give back.
843
00:48:30,508 --> 00:48:34,310
It transpires that
my oeuvre has evidentiary,
844
00:48:34,312 --> 00:48:36,746
not literary, merit.
Damn it.
845
00:48:36,748 --> 00:48:39,382
MICHEL:
You lose your voice
when you have ALS.
846
00:48:39,384 --> 00:48:41,918
And so he found--
He researched this place
847
00:48:41,920 --> 00:48:43,953
where you can actually,
um, voice bank,
848
00:48:43,955 --> 00:48:47,256
so his mechanical voice,
instead of being like
Stephen Hawking,
849
00:48:47,258 --> 00:48:49,859
his is gonna be his voice.
850
00:48:49,861 --> 00:48:52,862
Senator Russ Feingold
of Wisconsin
851
00:48:52,864 --> 00:48:54,630
also took himself
out of the running.
852
00:48:56,134 --> 00:48:58,935
[¶¶¶]
853
00:49:03,908 --> 00:49:05,408
Then it goes to
eye technology
854
00:49:05,410 --> 00:49:06,976
where he talks with his eyes,
855
00:49:06,978 --> 00:49:09,679
but he's talking
a letter at a time.
856
00:49:09,681 --> 00:49:12,214
WOMAN:
When you see
the green dots in there,
857
00:49:12,216 --> 00:49:14,383
that means it's
picking up on it,
858
00:49:14,385 --> 00:49:16,619
on your eyes.
First, let's get back--
859
00:49:16,621 --> 00:49:19,255
Get-- Get you back.
There you go.
860
00:49:19,257 --> 00:49:20,623
Got it.
861
00:49:20,625 --> 00:49:23,526
[¶¶¶]
862
00:49:25,496 --> 00:49:26,963
Do you just get really--
863
00:49:26,965 --> 00:49:28,397
As you get used to it,
can you do it--
864
00:49:28,399 --> 00:49:29,899
Can you--
Can you do it faster?
865
00:49:29,901 --> 00:49:31,400
WOMAN:
Oh, gosh, yes.
866
00:49:41,813 --> 00:49:44,714
STEVE:
Hi Michel, you rock.
867
00:49:44,716 --> 00:49:46,449
[WOMAN LAUGHING]
868
00:49:48,453 --> 00:49:51,320
It's the first time today,
man, I watched, uh,
869
00:49:51,322 --> 00:49:54,523
some of my videos
from last couple days,
870
00:49:54,525 --> 00:49:58,027
and I listened to myself
and I was--
871
00:49:58,029 --> 00:50:01,964
Sound--
Probably sound--
872
00:50:01,966 --> 00:50:07,069
Sound ill. Sound sick.
873
00:50:07,071 --> 00:50:10,172
And that, uh--
874
00:50:10,174 --> 00:50:12,041
It's tough, man.
875
00:50:15,680 --> 00:50:19,181
I've been thinking about
fathers and sons
876
00:50:19,183 --> 00:50:24,787
a lot since you've been born.
And...
877
00:50:24,789 --> 00:50:27,390
at this point it looks like
we're not going to have
878
00:50:27,392 --> 00:50:30,793
the normal father-son
relationship.
879
00:50:32,330 --> 00:50:35,531
I can't go out and play catch
with you.
880
00:50:35,533 --> 00:50:38,134
I can't throw you
a batting practice.
881
00:50:38,136 --> 00:50:42,238
But, uh, I want to do
everything I can
882
00:50:42,240 --> 00:50:44,807
to be a good father, uh,
883
00:50:44,809 --> 00:50:47,943
to give you what a son needs
884
00:50:47,945 --> 00:50:49,979
from his father.
885
00:50:49,981 --> 00:50:51,180
And, uh,
886
00:50:51,182 --> 00:50:54,650
I'm gonna be around, buddy.
887
00:50:54,652 --> 00:50:58,120
It's not gonna be easy,
but it's gonna be awesome.
888
00:50:58,122 --> 00:51:01,657
And I'm gonna be around until
889
00:51:01,659 --> 00:51:07,763
you are able
to stand on your own,
890
00:51:07,765 --> 00:51:09,865
as a man.
891
00:51:09,867 --> 00:51:12,001
MAN:
Steve, how old are you?
892
00:51:12,003 --> 00:51:14,170
34.
34.
893
00:51:14,172 --> 00:51:16,138
Do you know what
your weight is right now?
894
00:51:16,140 --> 00:51:18,307
190.
190.
895
00:51:18,309 --> 00:51:19,775
So it's gonna be
24 inches wide,
896
00:51:20,978 --> 00:51:22,478
it's gonna have
the casters up here.
897
00:51:22,480 --> 00:51:24,647
The casters up here,
you don't have 'em on this chair
898
00:51:24,649 --> 00:51:28,284
because it's a little more
stable base.
899
00:51:28,286 --> 00:51:31,087
[¶¶¶]
900
00:51:36,027 --> 00:51:38,427
[INDISTINCT DIALOG]
901
00:51:42,366 --> 00:51:44,133
STEVE:
It's crazy, man.
902
00:51:44,135 --> 00:51:45,768
I am to the point where
903
00:51:45,770 --> 00:51:48,604
I barely go out of the house
by myself.
904
00:51:48,606 --> 00:51:51,273
Michel goes
everywhere with me now.
905
00:51:51,275 --> 00:51:53,375
She helps me shower.
906
00:51:53,377 --> 00:51:54,810
She helps me
put on my clothes.
907
00:51:56,247 --> 00:52:00,116
She helps me eat.
908
00:52:00,118 --> 00:52:01,817
You have a mom
who's just incredible.
909
00:52:05,223 --> 00:52:07,123
Incredible.
910
00:52:07,125 --> 00:52:09,592
Remarkable, amazing.
911
00:52:09,594 --> 00:52:13,596
And we're both
so lucky to have her.
912
00:52:20,571 --> 00:52:22,838
I think any caretaker,
you're always kind of there
913
00:52:22,840 --> 00:52:24,807
trying to make things
easier for him.
914
00:52:24,809 --> 00:52:26,842
I just feel like it's--
It is-- It's what I do,
915
00:52:26,844 --> 00:52:28,978
and it's-- It's our
relationship, it's what we do,
916
00:52:28,980 --> 00:52:31,247
it's-- It's just kind of, like,
part of our life,
917
00:52:31,249 --> 00:52:32,748
like this is--
This is what it is.
918
00:52:32,750 --> 00:52:34,583
So I set up things for him
in the morning,
919
00:52:34,585 --> 00:52:36,285
I set up things for him
at night,
920
00:52:36,287 --> 00:52:37,920
help him walk,
help him brush his teeth,
921
00:52:37,922 --> 00:52:40,222
help him--
Help feed him,
and it's--
922
00:52:40,224 --> 00:52:42,758
It's just kind of like
a new part of life.
923
00:52:42,760 --> 00:52:46,495
Just like it is
learning how to
take care of Rivers.
924
00:52:50,067 --> 00:52:51,267
[BABY COOING]
925
00:52:51,269 --> 00:52:54,003
Mm, mm-mm-mm.
926
00:52:54,005 --> 00:52:58,140
[INDISTINCT]
927
00:52:58,142 --> 00:53:01,877
[BABY COOING]
928
00:53:01,879 --> 00:53:03,579
[BABY FUSSING]
929
00:53:03,581 --> 00:53:05,181
Hey.
930
00:53:05,183 --> 00:53:07,583
Hey, man, you're okay.
931
00:53:07,585 --> 00:53:12,488
STEVE:
Kids are a lot of
frickin' work, man.
932
00:53:12,490 --> 00:53:15,624
And, uh, we get up
every three hours
933
00:53:15,626 --> 00:53:18,627
to feed you,
and when I say we
934
00:53:18,629 --> 00:53:20,296
I mean Michel.
935
00:53:20,298 --> 00:53:22,064
You like that?
936
00:53:22,066 --> 00:53:25,167
And I can see it's
taking a toll on Michel.
937
00:53:25,169 --> 00:53:27,169
She's getting tired.
938
00:53:27,171 --> 00:53:29,738
And I'm gonna
think of ways to, uh--
939
00:53:29,740 --> 00:53:31,607
To help her,
940
00:53:31,609 --> 00:53:35,311
either having someone
stay over at night,
941
00:53:35,313 --> 00:53:37,646
or something, we gotta
figure out something
942
00:53:37,648 --> 00:53:39,915
because I'd like to somehow
ease that, uh, burden
943
00:53:42,820 --> 00:53:44,153
a little bit from her.
944
00:53:44,155 --> 00:53:46,288
So do you-- Are you--
Are you in that?
945
00:53:46,290 --> 00:53:48,123
I mean, are you familiar
with any of it,
946
00:53:48,125 --> 00:53:49,458
are you in the--
I mean, you look,
947
00:53:49,460 --> 00:53:51,160
you're obviously
in good shape.
948
00:53:51,162 --> 00:53:54,163
I mean, like, you are--
Are you, like, in the
therapy world, or--
949
00:53:54,165 --> 00:53:55,564
No.
No?
950
00:53:55,566 --> 00:53:58,934
He's a neighbor and,
big enough, like,
951
00:53:58,936 --> 00:54:02,171
he's going to move me
where she might not be able to.
952
00:54:02,173 --> 00:54:03,606
You know, he was my hero.
953
00:54:03,608 --> 00:54:05,708
This is the guy that
I wanted to be growing up.
954
00:54:05,710 --> 00:54:07,776
Turned out, you know,
he was dating Michel,
955
00:54:07,778 --> 00:54:10,346
and Michel used to
baby-sit me as a kid.
956
00:54:10,348 --> 00:54:13,082
When he was diagnosed
she asked me--
957
00:54:13,084 --> 00:54:14,683
She gave me an ultimatum.
958
00:54:14,685 --> 00:54:17,586
She said, "Blair,
you either quit your job,
959
00:54:17,588 --> 00:54:19,888
or I'm gonna kick you
in your dick."
960
00:54:24,228 --> 00:54:26,595
[GROANING]
961
00:54:31,335 --> 00:54:36,405
Blair and I's life purpose was
to make sure Steve was happy.
962
00:54:36,407 --> 00:54:37,873
There's times where
Steve would say,
963
00:54:37,875 --> 00:54:39,441
what am I doing?
What's the point?
964
00:54:39,443 --> 00:54:41,510
This is awful.
And we'd be like,
965
00:54:41,512 --> 00:54:43,212
okay, like, what can we do?
966
00:54:43,214 --> 00:54:44,947
Do a dance, build him up.
967
00:54:44,949 --> 00:54:46,982
And it was--
We had a fucking
bad ass unit.
968
00:54:47,852 --> 00:54:50,452
[¶¶¶]
969
00:54:57,595 --> 00:54:59,862
MICHEL:
The journey into the lake,
part one.
970
00:54:59,864 --> 00:55:02,331
...three, go.
971
00:55:06,270 --> 00:55:08,871
[¶¶¶]
972
00:55:10,641 --> 00:55:11,907
Damn!
973
00:55:11,909 --> 00:55:13,976
Rivers, be a part of
the fuckin' team,
974
00:55:13,978 --> 00:55:17,246
and eat your goddamn food.
975
00:55:17,248 --> 00:55:19,415
Hey. Hey. Hey.
976
00:55:19,417 --> 00:55:22,217
A-shoo, a-shoo.
Hey. Hey.
977
00:55:22,219 --> 00:55:23,819
[BLOWING]
978
00:55:23,821 --> 00:55:27,022
¶ How long have I known you,
brother? ¶
979
00:55:27,024 --> 00:55:29,024
¶ Hundreds of lives,
thousands of years ¶
980
00:55:31,796 --> 00:55:35,597
I feel like, in many ways,
I'm fulfilling my purpose.
981
00:55:35,599 --> 00:55:40,169
I feel excited every day
to get up and-- And make
982
00:55:40,171 --> 00:55:44,173
a difference and an impact
on people's life.
983
00:55:44,175 --> 00:55:48,477
I feel like I've put together
a good team of people
984
00:55:48,479 --> 00:55:50,079
to help take care of me.
985
00:55:50,081 --> 00:55:53,115
Um, I've put together
a good team of people
986
00:55:53,117 --> 00:55:55,517
to look for solutions.
987
00:56:00,791 --> 00:56:06,228
People will say, "Oh, it's such
a sad, tragic story."
988
00:56:06,230 --> 00:56:09,098
It is sad,
and so they're right,
989
00:56:09,100 --> 00:56:11,033
but it's not all sad.
990
00:56:11,035 --> 00:56:17,639
I think there is more
in my future than in my past.
991
00:56:17,641 --> 00:56:21,510
I believe my future
is bigger than my past.
992
00:56:21,512 --> 00:56:23,946
And so that's uplifting.
993
00:56:23,948 --> 00:56:25,848
That's inspiring.
994
00:56:25,850 --> 00:56:28,650
[BABBLING]
995
00:56:32,990 --> 00:56:34,523
Bah!
996
00:56:34,525 --> 00:56:38,193
[GIGGLING]
997
00:56:38,195 --> 00:56:41,130
Bah!
[GIGGLING]
998
00:56:45,803 --> 00:56:50,205
Lately, the coolest stuff
for me has been
999
00:56:50,207 --> 00:56:55,377
you falling asleep
on my, uh, lap
1000
00:56:55,379 --> 00:56:58,781
while we drive around
in my chair.
1001
00:56:58,783 --> 00:57:02,418
MICHEL:
Which you need to name,
by the way.
1002
00:57:02,420 --> 00:57:04,987
You mean my
electric chair.
1003
00:57:04,989 --> 00:57:06,955
This isn't the
electric chair, though.
1004
00:57:06,957 --> 00:57:08,657
MICHEL:
EC.
1005
00:57:08,659 --> 00:57:11,126
You should call it gonorrhea
because it's temporary.
1006
00:57:12,897 --> 00:57:14,229
[LAUGHING]
1007
00:57:14,231 --> 00:57:15,664
MICHEL:
Gonny?
1008
00:57:15,666 --> 00:57:18,133
Gonny.
MICHEL: Gonny.
1009
00:57:18,135 --> 00:57:20,636
Gonorrhea's temporary?
MICHEL: You just coined it--
1010
00:57:20,638 --> 00:57:23,138
Yeah. Penicillin
cures all that shit.
1011
00:57:23,140 --> 00:57:26,475
And doxycycline.
Somebody told me that.
1012
00:57:29,647 --> 00:57:31,413
[BABY FUSSING]
1013
00:57:31,415 --> 00:57:35,384
June 17, 2012.
1014
00:57:35,386 --> 00:57:37,119
Are you gonna shoot it?
1015
00:57:37,121 --> 00:57:39,288
MICHEL: It's a--
Look at the camera, Rivers.
1016
00:57:39,290 --> 00:57:40,889
Oh, Dad--
1017
00:57:40,891 --> 00:57:43,325
What?
MICHEL: It's a video.
1018
00:57:43,327 --> 00:57:45,661
Oh, it's a video.
I didn't know that.
1019
00:57:45,663 --> 00:57:47,696
Why didn't you--
Why didn't you tell me that?
1020
00:57:47,698 --> 00:57:49,565
Then I won't be
sitting here like a s--
1021
00:57:49,567 --> 00:57:51,400
Stuffed, uh, pepper.
1022
00:57:51,402 --> 00:57:53,469
Hey, buddy.
1023
00:57:54,805 --> 00:57:57,372
So what are all
the numbers for, Steve?
1024
00:57:57,374 --> 00:57:58,674
[LAUGHING]
1025
00:57:58,676 --> 00:58:02,010
What am I missing?
Am I missing something?
1026
00:58:02,012 --> 00:58:03,912
MICHEL:
All right,
he's doing his, uh--
1027
00:58:03,914 --> 00:58:07,416
June 17, 2012.
Oh, I get it.
1028
00:58:07,418 --> 00:58:09,818
[LAUGHING]
1029
00:58:12,490 --> 00:58:18,026
All dads never think
that they're, uh,
1030
00:58:18,028 --> 00:58:21,663
annoying their kids
like they do,
1031
00:58:21,665 --> 00:58:27,503
so I have no idea
how I will annoy you.
1032
00:58:28,405 --> 00:58:29,771
[SIGHS]
1033
00:58:29,773 --> 00:58:35,644
I hope it's not the way
that my dad annoys me.
1034
00:58:41,151 --> 00:58:44,553
So your taste buds
still working pretty good?
1035
00:58:46,657 --> 00:58:49,291
You still taste stuff?
1036
00:58:51,662 --> 00:58:53,662
You act like you've been
eating [BLEEP].
1037
00:58:53,664 --> 00:58:55,130
You got all embarrassed.
1038
00:58:55,132 --> 00:58:57,165
Your sense of humor
still working?
1039
00:58:57,167 --> 00:58:59,201
[LAUGHING]
1040
00:59:02,373 --> 00:59:05,507
I'm sorry, Steve.
1041
00:59:05,509 --> 00:59:06,775
Dad.
What?
1042
00:59:06,777 --> 00:59:08,710
I just asked if your
taste buds were working.
1043
00:59:08,712 --> 00:59:12,247
Do you know anything about ALS?
1044
00:59:12,249 --> 00:59:15,984
Not a lot, but it
looks like it's not--
It's--
1045
00:59:15,986 --> 00:59:18,820
It doesn't affect
your taste buds.
1046
00:59:18,822 --> 00:59:21,557
I didn't know that.
Didn't know that.
1047
00:59:21,559 --> 00:59:27,829
I was not embarrassed.
I was laughing at you.
1048
00:59:27,831 --> 00:59:29,932
Oh, you were laughing at me.
1049
00:59:29,934 --> 00:59:32,000
'Cause I didn't know that.
1050
00:59:32,002 --> 00:59:34,002
Okay. All right.
1051
00:59:34,004 --> 00:59:36,038
MICHEL:
That was
one of the best just now.
1052
00:59:36,040 --> 00:59:37,839
What-- He's got--
1053
00:59:37,841 --> 00:59:42,911
My dad will go from zero
to over the line.
1054
00:59:42,913 --> 00:59:48,717
Then like you're like,
"Wait, what?"
1055
00:59:50,187 --> 00:59:52,287
So weird.
1056
00:59:56,594 --> 01:00:00,929
STEVE:
There's almost
nothing more personal than
1057
01:00:00,931 --> 01:00:04,299
a father-son relationship,
you know.
1058
01:00:04,301 --> 01:00:08,804
What I think is
so interesting is that, uh,
1059
01:00:08,806 --> 01:00:12,908
this is obviously--
1060
01:00:12,910 --> 01:00:15,310
This whole thing,
these video journals,
this film,
1061
01:00:17,214 --> 01:00:20,616
all this is about
a father and a son.
1062
01:00:20,618 --> 01:00:23,085
Um, my dad and I, I think,
1063
01:00:23,087 --> 01:00:25,420
believe a lot of
the same things,
1064
01:00:25,422 --> 01:00:31,860
but he's this wacky,
fundamental, literal, uh,
1065
01:00:31,862 --> 01:00:36,765
kind of single-minded man
1066
01:00:36,767 --> 01:00:38,333
who thinks that
I should believe
1067
01:00:39,570 --> 01:00:42,571
exactly what he believes
1068
01:00:42,573 --> 01:00:45,774
in order to be saved,
I guess.
1069
01:00:52,716 --> 01:00:56,051
I was diagnosed
with a terminal illness
1070
01:00:56,053 --> 01:01:00,389
and I know that
when you get scared
1071
01:01:00,391 --> 01:01:02,357
you're going to jump
to your camp
1072
01:01:02,359 --> 01:01:04,359
that I need to pray like you.
1073
01:01:04,361 --> 01:01:08,163
I need to believe all the same
things that you believe.
1074
01:01:08,165 --> 01:01:12,000
You promised me that you would
not question my faith.
1075
01:01:12,002 --> 01:01:13,335
Okay.
1076
01:01:13,337 --> 01:01:17,539
But every time you question
my faith it crushes me.
1077
01:01:17,541 --> 01:01:20,709
I-- I can understand that.
1078
01:01:20,711 --> 01:01:24,012
Because here's the thing
about faith,
1079
01:01:24,014 --> 01:01:26,181
you can't argue
with someone's faith.
1080
01:01:26,183 --> 01:01:27,449
That's true.
1081
01:01:27,451 --> 01:01:30,218
You can't debate
with someone's beliefs.
1082
01:01:30,220 --> 01:01:31,286
That's true.
1083
01:01:31,288 --> 01:01:34,723
Because there's no proof
either way.
1084
01:01:34,725 --> 01:01:38,727
Stop trying to understand
1085
01:01:38,729 --> 01:01:41,196
with your mind
1086
01:01:41,198 --> 01:01:46,201
the relationship
between my heart and God.
1087
01:01:46,203 --> 01:01:47,402
Okay.
1088
01:01:47,404 --> 01:01:52,174
My soul is saved.
1089
01:01:52,176 --> 01:01:53,909
Okay.
1090
01:01:57,648 --> 01:02:01,016
Don't be angry at me.
Please.
1091
01:02:06,423 --> 01:02:09,858
[SOBBING]
1092
01:02:09,860 --> 01:02:13,028
Stephen, you're my son.
1093
01:02:14,465 --> 01:02:15,864
[SOBBING]
1094
01:02:15,866 --> 01:02:18,233
You don't know
what it feels like inside
1095
01:02:18,235 --> 01:02:21,136
that-- That I might
lose you, man,
1096
01:02:21,138 --> 01:02:22,771
you don't know
what if feels like,
1097
01:02:22,773 --> 01:02:25,540
it's killing me.
1098
01:02:25,542 --> 01:02:28,243
[SOBBING]
1099
01:02:37,721 --> 01:02:40,288
Glad you came.
1100
01:02:40,290 --> 01:02:42,891
I love you, Stephen,
with everything inside of me.
1101
01:02:42,893 --> 01:02:45,494
I love you too, Dad.
1102
01:02:53,570 --> 01:02:56,271
[BABY CRYING]
1103
01:03:02,379 --> 01:03:04,479
Who the hell brings
their kid to this thing?
1104
01:03:05,883 --> 01:03:08,116
All right, ready?
1105
01:03:08,118 --> 01:03:10,852
[LIP BUZZING]
[COOING]
1106
01:03:22,566 --> 01:03:25,534
I'm out of breath.
1107
01:03:32,509 --> 01:03:36,578
I think part of what we
do every day is search for
1108
01:03:36,580 --> 01:03:38,680
something that's....
1109
01:03:38,682 --> 01:03:42,417
permanent stabilization,
and,
1110
01:03:42,419 --> 01:03:44,786
you know,
maybe that's not out there,
1111
01:03:44,788 --> 01:03:48,890
but I'm hopeful. I'm hopeful.
1112
01:03:52,196 --> 01:03:55,363
All right, bud.
You'll be great.
1113
01:03:55,365 --> 01:03:57,499
Prick you here, okay?
1114
01:03:57,501 --> 01:03:58,934
All right.
1115
01:03:58,936 --> 01:04:01,536
[MACHINE HUMMING]
1116
01:04:01,538 --> 01:04:05,073
There's been cases where
stem cell has worked.
1117
01:04:05,075 --> 01:04:08,510
Some ALS patients
will have the procedure,
1118
01:04:08,512 --> 01:04:11,479
and they will not progress
any further.
1119
01:04:19,823 --> 01:04:22,157
MICHEL:
We spent lots of time
in the hospital.
1120
01:04:22,159 --> 01:04:23,725
Like, just sitting there,
1121
01:04:23,727 --> 01:04:26,561
so I needed to do something
so I just started drawing.
1122
01:04:28,532 --> 01:04:30,532
When I was drawing,
I could completely ignore
1123
01:04:30,534 --> 01:04:32,534
any doctors that came in,
or anybody who came in
1124
01:04:32,536 --> 01:04:33,935
that I didn't want
to talk to.
1125
01:04:33,937 --> 01:04:36,071
I just completely
can zone out.
1126
01:04:54,291 --> 01:04:57,659
He wants us to call
an ambulance.
1127
01:04:59,696 --> 01:05:02,330
Ask him if we should.
Ask him if we should.
1128
01:05:02,332 --> 01:05:04,232
BLAIR:
After that surgery,
1129
01:05:04,234 --> 01:05:06,534
there was definitely
an adverse effect,
1130
01:05:06,536 --> 01:05:08,603
and he was in such
a large amount of pain,
1131
01:05:10,207 --> 01:05:13,675
he was convinced that
he was gonna die.
1132
01:05:16,280 --> 01:05:19,814
I love you.
You love me?
1133
01:05:19,816 --> 01:05:22,317
I love you too,
are you scared?
1134
01:05:23,453 --> 01:05:25,086
You are?
1135
01:05:27,124 --> 01:05:33,461
Earlier this week
I had stem cell therapy.
1136
01:05:33,463 --> 01:05:35,597
And, uh...
1137
01:05:35,599 --> 01:05:38,400
so far, not so good.
1138
01:05:38,402 --> 01:05:40,235
MICHEL:
All right,
with steady pressure
1139
01:05:40,237 --> 01:05:42,103
gently insert enema tip
into rectum
1140
01:05:42,105 --> 01:05:44,039
with a slight
side to side movement
1141
01:05:44,041 --> 01:05:47,375
with tip
pointing toward navel.
1142
01:05:47,377 --> 01:05:48,743
Michel, look,
1143
01:05:48,745 --> 01:05:51,813
you have to be able to do this.
1144
01:05:51,815 --> 01:05:53,114
Okay.
1145
01:05:53,116 --> 01:05:55,850
Don't get me down there
and make me wait
1146
01:05:55,852 --> 01:06:00,121
for fucking 10 minutes, okay?
1147
01:06:00,123 --> 01:06:02,791
Okay?
Yeah.
1148
01:06:02,793 --> 01:06:04,726
Okay.
1149
01:06:07,130 --> 01:06:10,165
Is this your butt?
1150
01:06:11,935 --> 01:06:15,804
BLAIR: Oh, my God.
[LAUGHING]
1151
01:06:15,806 --> 01:06:17,472
MICHEL: Okay.
BLAIR: Is it all in?
1152
01:06:17,474 --> 01:06:18,606
It's all in.
1153
01:06:18,608 --> 01:06:20,208
Besides the stuff
that's in his--
1154
01:06:20,210 --> 01:06:24,412
I don't think anything went in.
1155
01:06:24,414 --> 01:06:26,781
You didn't feel it?
Nothing.
1156
01:06:26,783 --> 01:06:29,250
God-fuckin'-damn it!
1157
01:06:35,525 --> 01:06:37,425
Who knows about enemas?
1158
01:06:37,427 --> 01:06:38,960
Judy Robert,
thank you for coming.
1159
01:06:38,962 --> 01:06:40,962
We have some--
We have some
questions for you.
1160
01:06:40,964 --> 01:06:43,732
Judy, do you know
what you're about to
get yourself into?
1161
01:06:43,734 --> 01:06:45,300
I have a whole bottle
of lube.
1162
01:06:45,302 --> 01:06:47,302
What kind of lube
did you bring?
Is it scented?
1163
01:06:47,304 --> 01:06:48,937
I have--
Actually, I think it is.
1164
01:06:48,939 --> 01:06:50,672
It is.
What scent did you get?
1165
01:06:50,674 --> 01:06:52,140
Um, baby powder fresh.
1166
01:06:52,142 --> 01:06:54,075
Baby powder fresh.
I love that smell.
1167
01:06:54,077 --> 01:06:55,510
It's a truly
beautiful smell.
1168
01:06:55,512 --> 01:06:57,679
So, what are you expecting
out of Steve today?
1169
01:06:57,681 --> 01:06:59,014
Um, a lot of shit.
1170
01:06:59,016 --> 01:07:01,716
[LAUGHING]
I hope to get a lot of shit out.
1171
01:07:01,718 --> 01:07:03,385
All right.
1172
01:07:03,387 --> 01:07:05,553
I'm gonna know you
in a whole new way.
1173
01:07:05,555 --> 01:07:09,391
So do you feel it?
I mean, does it feel--
1174
01:07:09,393 --> 01:07:11,459
We record--
Recorded Steve earlier.
1175
01:07:11,461 --> 01:07:13,995
"I feel like
there's a football
lodged in my ass."
1176
01:07:13,997 --> 01:07:16,931
Okay, so, yeah,
there's probably like this.
1177
01:07:16,933 --> 01:07:18,533
You all right?
1178
01:07:21,838 --> 01:07:23,204
[STEVE GROANS]
1179
01:07:23,206 --> 01:07:25,173
Judy,
What?
1180
01:07:25,175 --> 01:07:30,979
am I the hottest guy
you've ever ass fingered?
1181
01:07:30,981 --> 01:07:33,581
[LAUGHING]
1182
01:07:35,218 --> 01:07:37,819
[STEVE GROANING]
1183
01:07:40,390 --> 01:07:43,358
JUDY:
That's it. That's it.
1184
01:07:52,436 --> 01:07:54,702
Rivers.
1185
01:08:01,745 --> 01:08:05,580
I'm having a bad day.
1186
01:08:06,450 --> 01:08:11,352
I'm an asshole to people,
1187
01:08:11,354 --> 01:08:13,655
and I don't care.
1188
01:08:13,657 --> 01:08:16,758
I can't talk.
1189
01:08:16,760 --> 01:08:19,727
I think the--
1190
01:08:19,729 --> 01:08:22,297
The last of my
1191
01:08:24,000 --> 01:08:27,802
talking days are here.
1192
01:08:32,943 --> 01:08:37,812
The drugs I take don't work.
1193
01:08:39,349 --> 01:08:44,119
I have no faith that I can heal.
1194
01:08:46,089 --> 01:08:49,290
I have no hope. None.
1195
01:08:49,292 --> 01:08:53,461
No hope whatever.
1196
01:08:57,567 --> 01:09:01,069
I want to punch
1197
01:09:01,071 --> 01:09:04,572
something, but I can't.
1198
01:09:08,145 --> 01:09:12,847
The only thing I can do
is scream.
1199
01:09:14,818 --> 01:09:16,718
[SCREAMING]
1200
01:09:32,602 --> 01:09:35,403
DREW BREES:
"On Monday,
September 25, 2006,
1201
01:09:35,405 --> 01:09:36,871
"Steve Gleason
was responsible for
1202
01:09:36,873 --> 01:09:38,439
"one of the most
dramatic moments
1203
01:09:38,441 --> 01:09:40,275
"in New Orleans Saints
history.
1204
01:09:40,277 --> 01:09:41,843
"He blocked a punt
in the first quarter
1205
01:09:41,845 --> 01:09:43,645
"of the team's return
to the Superdome
1206
01:09:43,647 --> 01:09:45,480
"following hurricane Katrina.
1207
01:09:45,482 --> 01:09:47,482
"That blocked punt,
that season,
1208
01:09:47,484 --> 01:09:49,884
"symbolized the rebirth of
the city of New Orleans."
1209
01:09:51,288 --> 01:09:55,423
Amen.
[APPLAUSE]
1210
01:09:59,062 --> 01:10:03,831
Yesterday, about five minutes
1211
01:10:03,833 --> 01:10:06,334
after I got home
1212
01:10:06,336 --> 01:10:12,073
I pooped all over myself
and my wheelchair.
1213
01:10:12,075 --> 01:10:14,475
And I think it's crazy
1214
01:10:14,477 --> 01:10:17,145
that I can go from
1215
01:10:17,147 --> 01:10:19,847
people saying,
"You're my hero,"
1216
01:10:19,849 --> 01:10:25,620
to having to be helped
onto a toilet
1217
01:10:25,622 --> 01:10:30,491
with my pants full of shit.
1218
01:10:30,493 --> 01:10:36,898
It's an incredible example
of polarities,
1219
01:10:36,900 --> 01:10:39,400
and dichotomies,
1220
01:10:39,402 --> 01:10:42,937
and juxtapositions
1221
01:10:42,939 --> 01:10:45,940
that is my life.
1222
01:10:45,942 --> 01:10:50,645
¶ Happy birthday,
dear Rivers ¶
1223
01:10:50,647 --> 01:10:55,350
¶ Happy birthday to you ¶¶
1224
01:10:55,352 --> 01:10:57,952
[CHEERING, APPLAUSE]
1225
01:10:59,889 --> 01:11:02,457
[INDISTINCT CHATTER]
1226
01:11:18,341 --> 01:11:21,709
[¶¶¶]
1227
01:11:47,404 --> 01:11:48,770
WOMAN:
When you blow out,
1228
01:11:48,772 --> 01:11:50,972
you gotta blow out
hard and fast,
1229
01:11:50,974 --> 01:11:54,042
'cause it's measuring
how much you get out
in one second, okay?
1230
01:11:55,812 --> 01:11:57,478
A normal breathe in.
1231
01:11:57,480 --> 01:12:00,348
Suck in.
Now blow, push!
1232
01:12:00,350 --> 01:12:03,284
Push. Push, push, push,
push, push push,
1233
01:12:03,286 --> 01:12:05,720
push, push, push, push,
suck in big.
1234
01:12:05,722 --> 01:12:06,954
That's terrible.
1235
01:12:06,956 --> 01:12:09,357
Uh-oh, we're not
accepting that one.
1236
01:12:09,359 --> 01:12:11,693
It's supposed to
look like that.
1237
01:12:14,264 --> 01:12:15,730
When did you get this?
1238
01:12:15,732 --> 01:12:18,733
You didn't have this
last time when I saw you.
1239
01:12:18,735 --> 01:12:22,704
A few weeks ago.
That's so cool.
1240
01:12:22,706 --> 01:12:26,240
This setup I have
costs $6,000,
1241
01:12:26,242 --> 01:12:30,345
but others cost 20k.
1242
01:12:31,348 --> 01:12:34,315
[MOANS]
1243
01:12:34,317 --> 01:12:36,384
[BABBLING]
[MOANS]
1244
01:12:36,386 --> 01:12:38,186
Alligator.
1245
01:12:38,188 --> 01:12:41,255
Mom.
Alligator.
1246
01:12:41,257 --> 01:12:43,758
I love him.
1247
01:12:43,760 --> 01:12:46,227
Ah. Daddy.
1248
01:12:46,229 --> 01:12:48,429
[LAUGHING]
1249
01:12:50,367 --> 01:12:52,433
Say it again, bud.
1250
01:12:53,737 --> 01:12:56,237
Daddy.
1251
01:12:56,239 --> 01:12:58,139
Daddy.
1252
01:12:58,141 --> 01:12:59,741
Daddy.
1253
01:12:59,743 --> 01:13:01,175
Daddy.
1254
01:13:01,177 --> 01:13:03,444
[BABBLING]
1255
01:13:03,446 --> 01:13:06,180
I love him.
1256
01:13:06,182 --> 01:13:08,116
[BABBLING]
1257
01:13:14,090 --> 01:13:17,024
I love him.
1258
01:13:17,026 --> 01:13:18,793
[BABBLING]
1259
01:13:22,699 --> 01:13:26,000
Rivers, I want to
talk about obstacles
1260
01:13:26,002 --> 01:13:27,435
in adversity.
1261
01:13:27,437 --> 01:13:29,103
No matter what,
how wealthy you are,
1262
01:13:30,039 --> 01:13:31,372
how poor you are,
1263
01:13:31,374 --> 01:13:33,141
we all face adversity.
1264
01:13:33,143 --> 01:13:35,343
I do not want you to fail,
1265
01:13:35,345 --> 01:13:37,945
but I want you to
put yourself out there,
1266
01:13:37,947 --> 01:13:40,782
and available for
potential rejection.
1267
01:13:40,784 --> 01:13:44,685
In ways, I think,
that's how we succeed
1268
01:13:44,687 --> 01:13:46,721
because that's how we grow,
1269
01:13:46,723 --> 01:13:49,424
and that's how we
gain perspective.
1270
01:13:49,426 --> 01:13:53,494
¶ When I'm wiser ¶
1271
01:13:53,496 --> 01:13:57,698
¶ And growing taller ¶
1272
01:13:57,700 --> 01:14:02,603
¶ I will see your way ¶
1273
01:14:05,375 --> 01:14:10,445
¶ When I've come to the ¶
1274
01:14:10,447 --> 01:14:13,314
¶ Places I'm goin' ¶
1275
01:14:13,316 --> 01:14:18,986
¶ I will know your ways ¶
1276
01:14:21,658 --> 01:14:25,560
¶ Oooh ¶
1277
01:14:25,562 --> 01:14:29,597
¶ Ooh, ooh, ooh ¶
1278
01:14:29,599 --> 01:14:32,500
¶ Ooh, ooh ¶
1279
01:14:32,502 --> 01:14:36,003
¶ Ooh, ooh, ooh ¶
1280
01:14:37,373 --> 01:14:39,440
¶ I can feel it hurt now ¶
1281
01:14:39,442 --> 01:14:42,777
¶ I can turn this pain plain ¶
1282
01:14:45,381 --> 01:14:47,014
¶ Try and see it clear ¶
1283
01:14:47,016 --> 01:14:49,283
¶ But I don't know
why it's here ¶
1284
01:14:49,285 --> 01:14:51,385
No!
1285
01:14:51,387 --> 01:14:53,120
Whoa.
1286
01:14:53,122 --> 01:14:55,490
¶ You can keep
the sound down ¶
1287
01:14:55,492 --> 01:14:57,625
¶ As long as you want now ¶
1288
01:14:57,627 --> 01:15:00,862
¶ Dude, yeah ¶
1289
01:15:00,864 --> 01:15:03,130
¶ You can push it on another ¶
1290
01:15:03,132 --> 01:15:05,967
¶ Damn, that man's
your brother ¶
1291
01:15:05,969 --> 01:15:08,035
Oh-oh.
1292
01:15:09,772 --> 01:15:13,508
¶ When I'm wiser ¶
1293
01:15:13,510 --> 01:15:17,545
¶ And growing taller ¶
1294
01:15:17,547 --> 01:15:22,917
¶ I will see your eyes ¶
1295
01:15:25,588 --> 01:15:27,855
¶ When I'm wiser ¶
1296
01:15:27,857 --> 01:15:29,457
[LAUGHING]
1297
01:15:29,459 --> 01:15:33,528
¶ And growing taller ¶
1298
01:15:33,530 --> 01:15:39,066
¶ I will see your eyes ¶
1299
01:15:41,204 --> 01:15:43,237
¶ When I've come to
the places I've been ¶
1300
01:15:49,212 --> 01:15:51,712
¶ I will know ¶
1301
01:15:51,714 --> 01:15:53,981
MICHEL:
Yay!
1302
01:15:56,486 --> 01:15:58,286
[RIVERS SHOUTING]
1303
01:15:58,288 --> 01:16:00,688
[VOICES ON TV]
1304
01:16:02,191 --> 01:16:05,226
I wasn't sleeping
at night because I was
caretaking for Steve.
1305
01:16:05,228 --> 01:16:09,297
[VOICES ON TV CONTINUE]
1306
01:16:09,299 --> 01:16:11,132
And then, uh, the addition
1307
01:16:11,134 --> 01:16:14,001
of Rivers getting
a little bit more needy.
1308
01:16:14,003 --> 01:16:16,470
It was hard doing that
plus taking care of a kid.
1309
01:16:16,472 --> 01:16:18,806
[TV continues]
1310
01:16:18,808 --> 01:16:23,010
At some point
put Rivers on my lap.
1311
01:16:29,686 --> 01:16:32,286
At some point
put Rivers on my lap.
1312
01:16:32,288 --> 01:16:35,590
Rivers, look at me,
You do not hit your mom.
1313
01:16:41,898 --> 01:16:43,631
You cannot hit your mommy.
1314
01:16:43,633 --> 01:16:45,533
You're going to go
to time out.
1315
01:16:45,535 --> 01:16:47,802
[CRYING]
1316
01:16:56,679 --> 01:16:58,012
All right, buddy.
1317
01:16:58,014 --> 01:17:00,414
Now you know you cannot
hit your mommy.
1318
01:17:00,416 --> 01:17:01,716
[CRYING]
1319
01:17:01,718 --> 01:17:03,784
You understand why
you were in there?
1320
01:17:03,786 --> 01:17:05,653
Because you hit me
three times.
1321
01:17:05,655 --> 01:17:07,622
You cannot do that, okay?
1322
01:17:07,624 --> 01:17:08,923
All right, bud?
1323
01:17:08,925 --> 01:17:10,791
People started saying, like,
1324
01:17:10,793 --> 01:17:12,660
"Michel, you need help,
you need help,
1325
01:17:12,662 --> 01:17:14,695
you need more help,"
and it's kind of like,
1326
01:17:14,697 --> 01:17:16,697
well, this has turned
into my purpose,
1327
01:17:16,699 --> 01:17:18,599
and I don't want to seem weak,
1328
01:17:18,601 --> 01:17:20,768
and, like, I see
other people doing it.
1329
01:17:26,409 --> 01:17:28,743
Can I get a pillow?
1330
01:17:37,286 --> 01:17:38,953
Come on now.
1331
01:19:20,456 --> 01:19:24,492
Honestly, I think the enormity
of what she's going through now
1332
01:19:24,494 --> 01:19:26,694
and dealing
with this situation
1333
01:19:26,696 --> 01:19:28,195
just takes all of her energy.
1334
01:19:28,197 --> 01:19:30,097
I still think
she's trying her best
1335
01:19:30,099 --> 01:19:31,832
to do as much
as she can for people
1336
01:19:31,834 --> 01:19:35,102
and especially for Rivers
and Steve and her family
1337
01:19:35,104 --> 01:19:38,506
and struggling just to deal
with the situation.
1338
01:19:40,476 --> 01:19:42,877
It's easier, almost,
to, like, make a difference
1339
01:19:42,879 --> 01:19:44,411
with the world
with this disease.
1340
01:19:44,413 --> 01:19:47,782
It's, uh, some face time
on TV or some speeches
1341
01:19:47,784 --> 01:19:48,983
or some Tweets,
1342
01:19:48,985 --> 01:19:50,317
versus, like, the reality
1343
01:19:50,319 --> 01:19:52,353
of the hardness it is
to maintain relationships
1344
01:19:52,355 --> 01:19:54,388
when you can't move
or help or talk,
1345
01:19:54,390 --> 01:19:56,991
and so we're just kind of
traveling like this,
1346
01:19:56,993 --> 01:19:58,659
like we're not separating,
1347
01:19:58,661 --> 01:20:03,097
but we're separated in what
we wanted to do with life.
1348
01:20:03,099 --> 01:20:05,332
WOMAN:
Tonight the federal
government is saying no
1349
01:20:05,334 --> 01:20:07,701
to some devices that give
people with disabilities
1350
01:20:07,703 --> 01:20:09,336
a voice literally.
1351
01:20:09,338 --> 01:20:11,338
MAN:
Recent changes
to Medicare and Medicaid
1352
01:20:11,340 --> 01:20:13,307
have limited
ALS patients access
1353
01:20:13,309 --> 01:20:15,876
to speech generation devices.
1354
01:20:15,878 --> 01:20:18,479
Team Gleason became
one of the only entities
1355
01:20:18,481 --> 01:20:22,149
that was giving
these speech devices,
1356
01:20:22,151 --> 01:20:25,152
so the people
that couldn't afford it
through Medicare anymore
1357
01:20:25,154 --> 01:20:26,754
still wanted to communicate,
1358
01:20:26,756 --> 01:20:28,689
and we wanted them to be
able to communicate,
1359
01:20:28,691 --> 01:20:31,559
so we just started fulfilling
all of our requests,
1360
01:20:31,561 --> 01:20:35,529
which meant it was 2
and 3 and 400,000 a month.
1361
01:20:37,867 --> 01:20:39,533
We were able to fill
every request
1362
01:20:39,535 --> 01:20:41,135
that people asked of us.
1363
01:20:41,137 --> 01:20:44,672
So much so that it's depleted
our money that we had,
1364
01:20:44,674 --> 01:20:47,675
so we're now actually going out
and beating on doors
1365
01:20:47,677 --> 01:20:51,245
and asking people
for money again.
1366
01:20:51,247 --> 01:20:53,480
WOMAN:
Former Saints team captain
Steve Gleason
1367
01:20:53,482 --> 01:20:56,417
and his foundation
organized a Gleason Gras,
1368
01:20:56,419 --> 01:20:58,586
a music celebration
at Champion Square
1369
01:20:58,588 --> 01:21:00,554
to raise money
and awareness about ALS.
1370
01:21:02,225 --> 01:21:04,625
When I say "Gleason,"
you say "Gras."
1371
01:21:04,627 --> 01:21:05,926
Gleason!
CROWD: Gras!
1372
01:21:05,928 --> 01:21:07,494
Gleason!
Gras!
1373
01:21:07,496 --> 01:21:09,897
MAN:
Thousands gathered
to celebrate
1374
01:21:09,899 --> 01:21:13,167
the inspiring effort
of one man.
1375
01:21:14,637 --> 01:21:18,272
You've changed my life.
1376
01:21:18,274 --> 01:21:20,574
You're so great.
1377
01:21:26,415 --> 01:21:29,783
We went up to Washington
and met with the Secretary
1378
01:21:29,785 --> 01:21:32,019
of the Department of Health
and Human Services
1379
01:21:32,021 --> 01:21:34,021
and pled our case.
1380
01:21:36,359 --> 01:21:39,126
We hope to pass this law,
1381
01:21:39,128 --> 01:21:43,063
and once again Medicare
will pay for these devices.
1382
01:21:47,536 --> 01:21:49,069
[RIVERS FUSSING]
1383
01:21:49,071 --> 01:21:50,304
No.
Yes.
1384
01:21:50,306 --> 01:21:53,707
One bite of this,
and I'll give you chips.
1385
01:21:53,709 --> 01:21:57,645
We had no idea Steve was
just going to get bigger
and bigger and bigger.
1386
01:21:57,647 --> 01:21:59,947
I think with Team Gleason,
he's putting too much
1387
01:21:59,949 --> 01:22:01,482
into Team Gleason
and not doing enough
1388
01:22:01,484 --> 01:22:03,350
of his video journals
and stuff for Rivers.
1389
01:22:03,352 --> 01:22:05,219
I think
it's a balancing act.
1390
01:22:05,221 --> 01:22:07,855
We all have to balance things.
It's kind of his balance.
1391
01:22:07,857 --> 01:22:11,458
And it's a huge--
It's super-hard.
1392
01:22:11,460 --> 01:22:13,460
[SIGHS]
1393
01:22:19,368 --> 01:22:22,870
VOICE SIMULATOR:
This is the most
significant achievement
1394
01:22:22,872 --> 01:22:25,606
for Team Gleason to date.
1395
01:22:25,608 --> 01:22:28,208
[CHEERING]
1396
01:22:32,815 --> 01:22:36,483
What's going on here, Rivers?
1397
01:22:36,485 --> 01:22:39,119
See all the cameras?
1398
01:22:39,121 --> 01:22:40,587
You like it in here?
1399
01:22:40,589 --> 01:22:43,891
VOICE SIMULATOR:
Hey, Vavoom, what you doing?
1400
01:22:43,893 --> 01:22:46,060
What you doing?
1401
01:22:57,807 --> 01:22:59,206
Steve has wanted
to be a hero,
1402
01:22:59,208 --> 01:23:02,409
and it's amazing
that he has gotten--
1403
01:23:02,411 --> 01:23:04,244
And he is legitimately a hero--
1404
01:23:04,246 --> 01:23:06,880
Like, of a town
for blocking a punt,
1405
01:23:06,882 --> 01:23:09,016
and now, like, the face of ALS.
1406
01:23:09,018 --> 01:23:11,051
But people come up to me
and be like,
1407
01:23:11,053 --> 01:23:12,920
"Congratulations."
1408
01:23:12,922 --> 01:23:15,656
And you're like, "For what?"
1409
01:23:15,658 --> 01:23:17,091
Like, "What are you talk--"
1410
01:23:17,093 --> 01:23:19,927
Because, like, "What?
What do you mean?"
1411
01:23:19,929 --> 01:23:21,128
It's just such a--
1412
01:23:21,130 --> 01:23:23,764
This whole thing
is a huge mind fuck.
1413
01:23:58,801 --> 01:24:02,336
STEVE:
It's important to me
that we do Rivers sandwich
1414
01:24:02,338 --> 01:24:04,972
and nose kiss every night,
Michel.
1415
01:24:04,974 --> 01:24:11,445
That's the only physical time
I get with him all day.
1416
01:24:11,447 --> 01:24:13,147
Okay.
1417
01:24:18,220 --> 01:24:20,821
You tried
to skip it tonight.
1418
01:24:22,725 --> 01:24:24,792
Okay.
1419
01:24:24,794 --> 01:24:27,094
And you took-- Okay.
1420
01:24:33,002 --> 01:24:35,502
Thanks.
1421
01:24:38,607 --> 01:24:41,175
Thanks.
1422
01:24:42,478 --> 01:24:44,478
You're welcome.
1423
01:24:46,148 --> 01:24:48,115
I didn't mean it stupid.
1424
01:24:48,117 --> 01:24:50,350
I just didn't think about it.
1425
01:25:04,133 --> 01:25:07,101
Are you okay, Mick?
1426
01:25:07,103 --> 01:25:08,869
Great.
1427
01:25:10,739 --> 01:25:12,806
Yeah.
1428
01:25:17,113 --> 01:25:19,346
Shit.
1429
01:25:44,039 --> 01:25:45,839
Are you okay?
1430
01:25:45,841 --> 01:25:47,875
Yep.
1431
01:25:51,280 --> 01:25:55,182
I feel like you have no
compassion towards me.
1432
01:25:55,184 --> 01:25:57,251
Everything is rushed.
1433
01:25:57,253 --> 01:26:00,320
You always have
somewhere else to be.
1434
01:26:00,322 --> 01:26:02,723
You finish my sentences.
1435
01:26:02,725 --> 01:26:06,360
You rush any care
that you give me.
1436
01:26:06,362 --> 01:26:10,397
I don't understand
what I did to deserve it.
1437
01:26:10,399 --> 01:26:13,834
Please tell me
how I can improve.
1438
01:26:15,237 --> 01:26:17,804
You walked by me
ten times tonight
1439
01:26:17,806 --> 01:26:20,274
while Rivers
was on my lap.
1440
01:26:20,276 --> 01:26:22,709
I tried to get
your attention.
1441
01:26:22,711 --> 01:26:26,413
You didn't
even look at me.
1442
01:26:27,983 --> 01:26:30,250
Sorry.
1443
01:26:32,388 --> 01:26:34,321
I don't think it's anything
you can improve.
1444
01:26:34,323 --> 01:26:37,891
I think
it's how I can improve.
1445
01:26:37,893 --> 01:26:41,929
Do you feel angry
when you are with me?
1446
01:26:41,931 --> 01:26:46,099
Um... No.
1447
01:26:46,101 --> 01:26:48,001
I feel more angry with myself,
1448
01:26:48,003 --> 01:26:52,272
for how I feel in general.
1449
01:26:55,110 --> 01:27:00,280
What can I do to be
more important to you?
1450
01:27:00,282 --> 01:27:02,983
I don't know.
1451
01:27:07,756 --> 01:27:11,758
If you want to talk--
You don't have to,
1452
01:27:11,760 --> 01:27:15,262
but if you want to,
I will listen.
1453
01:27:15,264 --> 01:27:17,531
Thank you, buddy.
1454
01:27:30,145 --> 01:27:32,746
[PLAYING GUITAR]
1455
01:27:35,384 --> 01:27:37,784
MICHEL:
That's my favorite song.
1456
01:27:37,786 --> 01:27:40,287
MAN:
Your favorite song
is "Come Back"?
1457
01:27:40,289 --> 01:27:42,756
[CHATTER]
1458
01:27:46,695 --> 01:27:51,265
I must say I have done some
amazing stuff in my life,
1459
01:27:51,267 --> 01:27:55,902
but this experience was
right at the top of the list.
1460
01:27:55,904 --> 01:28:01,742
I just interviewed Pearl Jam
on their latest album.
1461
01:28:01,744 --> 01:28:04,344
The music
you guys have created
1462
01:28:04,346 --> 01:28:05,812
has plastered the wall
1463
01:28:05,814 --> 01:28:08,548
of my adolescent
and adult life.
1464
01:28:08,550 --> 01:28:10,017
I want to thank you
1465
01:28:10,019 --> 01:28:12,653
for providing
the significant portion
1466
01:28:12,655 --> 01:28:16,456
of the soundtrack
for my life.
1467
01:28:16,458 --> 01:28:18,592
I have my son Rivers.
1468
01:28:18,594 --> 01:28:22,029
I am assembling a video
journal library for him
1469
01:28:22,031 --> 01:28:27,301
in case the experts are
right about my timed life.
1470
01:28:27,303 --> 01:28:29,469
You did not know your dad.
1471
01:28:29,471 --> 01:28:34,775
What are a couple of things
you wish you knew about him?
1472
01:28:34,777 --> 01:28:38,412
Yeah, see if I can
get through this. Um...
1473
01:28:39,848 --> 01:28:42,015
That's a great question
and coming from you.
1474
01:28:43,419 --> 01:28:45,018
Um, I couldn't
appreciate it more.
1475
01:28:46,822 --> 01:28:48,055
Um...
1476
01:28:48,057 --> 01:28:51,591
Of course I think
just deep down I just would--
1477
01:28:53,429 --> 01:28:57,164
Would have wanted to know
just, you know,
1478
01:28:57,166 --> 01:28:59,833
if he loved me
and how much, you know.
1479
01:28:59,835 --> 01:29:02,936
I get the idea that he did,
you know.
1480
01:29:05,374 --> 01:29:08,308
But, uh, the other nice thing
would have been
1481
01:29:08,310 --> 01:29:11,712
just having, um,
someone of my own blood
1482
01:29:11,714 --> 01:29:15,282
give me some insight of--
And, you know,
1483
01:29:15,284 --> 01:29:17,584
what it would be like to...
1484
01:29:18,821 --> 01:29:22,422
grow up and, you know,
be a man, a good man.
1485
01:29:22,424 --> 01:29:23,890
I wish he was around now,
1486
01:29:23,892 --> 01:29:27,260
and I like to think
he'd be proud of me.
1487
01:29:27,262 --> 01:29:29,129
Thanks, man.
1488
01:29:30,966 --> 01:29:33,533
I-- I knew this was
going to come in
handy for something,
1489
01:29:33,535 --> 01:29:35,836
but I didn't know what.
1490
01:29:37,740 --> 01:29:41,408
Steve Gleason sitting in
for Barbara Walters this week.
1491
01:29:47,750 --> 01:29:52,386
Rivers, you are
an awesome boy or man,
1492
01:29:52,388 --> 01:29:54,087
depending on what times
in your life
1493
01:29:55,257 --> 01:29:57,157
you happen to watch this.
1494
01:29:57,159 --> 01:30:00,427
But the world
can grind on you.
1495
01:30:00,429 --> 01:30:02,496
Do not become obsessive
1496
01:30:02,498 --> 01:30:04,097
to the point
where you are unhappy.
1497
01:30:05,534 --> 01:30:07,100
Let your best stand
for what it is.
1498
01:30:08,537 --> 01:30:11,838
If it's not sufficient,
that's okay.
1499
01:30:11,840 --> 01:30:15,442
You did your best. Move on.
1500
01:30:18,347 --> 01:30:19,980
We're a grassroot,
1501
01:30:19,982 --> 01:30:22,549
pretty much, you know,
pro bono kind of things,
1502
01:30:22,551 --> 01:30:23,750
volunteers,
1503
01:30:23,752 --> 01:30:25,552
that has done in two years
1504
01:30:25,554 --> 01:30:27,387
some incredible things.
1505
01:30:27,389 --> 01:30:30,056
To live with ALS
is hard enough as it is,
1506
01:30:30,058 --> 01:30:32,926
but I think to live in the way
that Steve is living with it,
1507
01:30:32,928 --> 01:30:34,995
you know, to be so
out front and public,
1508
01:30:34,997 --> 01:30:37,597
uh, there's a lot of sacrifice
comes with that,
1509
01:30:37,599 --> 01:30:40,200
and I think it's a sacrifice,
you know, on your family
1510
01:30:40,202 --> 01:30:42,803
and to have your priorities
in the right place.
1511
01:30:42,805 --> 01:30:47,474
You know, we have to reflect
on where we need to be.
1512
01:30:47,476 --> 01:30:48,942
I think it's going
to be up to Steve,
1513
01:30:48,944 --> 01:30:50,977
knowing that all these
people want to partner up
1514
01:30:50,979 --> 01:30:53,313
with, you know, where he wants
to go, in which direction.
1515
01:30:53,315 --> 01:30:58,351
I realize that I have pushed us
to the point we are right now,
1516
01:30:58,353 --> 01:31:03,023
but I think I need
to get more into balance.
1517
01:31:03,025 --> 01:31:07,294
I am frustrated
because I have only written
1518
01:31:07,296 --> 01:31:11,731
two or three journals
in the past few months.
1519
01:31:11,733 --> 01:31:14,835
I am tired. Michel is tired.
1520
01:31:14,837 --> 01:31:20,140
I think we, Michel and I,
need to pull back quite a lot.
1521
01:31:23,679 --> 01:31:26,079
It was like music to our ears
because it's like
1522
01:31:26,081 --> 01:31:28,415
finally Steve is going
to take a step back
1523
01:31:28,417 --> 01:31:30,050
and just focus
on what really matters,
1524
01:31:30,052 --> 01:31:33,420
and that's his health,
his relationship with his wife,
1525
01:31:33,422 --> 01:31:35,489
and his son Rivers.
1526
01:31:39,928 --> 01:31:41,595
I have never wanted
to be a saint.
1527
01:31:41,597 --> 01:31:43,296
I've never been a saint
before Steve.
1528
01:31:43,298 --> 01:31:44,698
I'm never going to be a saint.
1529
01:31:44,700 --> 01:31:46,366
I don't want to be,
like, a devil
1530
01:31:46,368 --> 01:31:49,836
or a dick face, but I don't
want to be a saint, either.
1531
01:31:49,838 --> 01:31:52,005
I just want
to be a real person.
1532
01:32:07,990 --> 01:32:10,924
One, two, three, go.
1533
01:32:19,201 --> 01:32:20,433
[GRUNTS]
1534
01:32:20,435 --> 01:32:22,869
[CHATTER]
1535
01:32:25,741 --> 01:32:28,241
This is brutal.
1536
01:32:33,282 --> 01:32:36,249
Just when we spoke to that
doctor a couple of weeks ago,
1537
01:32:36,251 --> 01:32:39,886
he's like-- Essentially, you
can live as long as you want,
1538
01:32:39,888 --> 01:32:42,689
but there's a reason
people choose not to
1539
01:32:42,691 --> 01:32:45,625
because life is so sucky
1540
01:32:45,627 --> 01:32:47,160
that it seems
like that they choose,
1541
01:32:47,162 --> 01:32:49,763
like, "Hey, this is
a better option," you know?
1542
01:32:49,765 --> 01:32:53,800
Um, so I think that's
what I'm really scared of
1543
01:32:53,802 --> 01:32:56,269
is, like, I have a little bit
of control over when I die,
1544
01:32:59,074 --> 01:33:01,508
maybe, but may--
That might be false,
1545
01:33:01,510 --> 01:33:04,945
like maybe not.
Maybe there's--
1546
01:33:04,947 --> 01:33:06,780
I don't know
how it happens, you know,
1547
01:33:06,782 --> 01:33:11,284
when people with ALS get
to the death point, you know.
1548
01:33:11,286 --> 01:33:12,652
Give him a big one.
1549
01:33:12,654 --> 01:33:14,588
Give a big--
Is this a salami sandwich?
1550
01:33:14,590 --> 01:33:15,789
[PLAY MUNCHING]
1551
01:33:15,791 --> 01:33:17,624
I think it's
a chicken sandwich.
1552
01:33:17,626 --> 01:33:19,359
[PLAY MUNCHING]
1553
01:33:19,361 --> 01:33:21,728
[COOING]
1554
01:33:27,169 --> 01:33:33,006
I know when we first met when
you were able to communicate
1555
01:33:33,008 --> 01:33:38,678
very clearly at that time,
early in the process,
1556
01:33:38,680 --> 01:33:41,114
you were very clear
that as things moved forward
1557
01:33:41,116 --> 01:33:46,353
you were gonna utilize
any available technology
1558
01:33:46,355 --> 01:33:47,654
to stay in the game.
1559
01:33:47,656 --> 01:33:49,723
Comfortably, with the best
quality of life
1560
01:33:49,725 --> 01:33:52,559
that you could have.
1561
01:33:52,561 --> 01:33:54,728
That I know has been your goal,
1562
01:33:54,730 --> 01:33:57,030
but I wanted to revisit that
with you.
1563
01:33:57,032 --> 01:34:00,934
I have had the opportunity
to contemplate my own death
1564
01:34:00,936 --> 01:34:03,737
quite thoroughly
the past few years.
1565
01:34:03,739 --> 01:34:05,939
I say it's an opportunity
1566
01:34:05,941 --> 01:34:10,243
because I think understanding
one's mortality
1567
01:34:10,245 --> 01:34:14,247
can help open a person
to lead a more meaningful life.
1568
01:34:14,249 --> 01:34:18,118
I fight to stay alive
for my son,
1569
01:34:18,120 --> 01:34:21,955
for my wife, my friends
and family.
1570
01:34:21,957 --> 01:34:24,924
I am not giving up.
1571
01:34:35,904 --> 01:34:39,205
One of the things that I
always admired about him,
1572
01:34:39,207 --> 01:34:43,243
it felt that their relationship
will continue for a long time,
1573
01:34:43,245 --> 01:34:46,312
is that they could tell each
other everything and anything.
1574
01:34:49,518 --> 01:34:51,785
Honest as could be, truthful,
1575
01:34:51,787 --> 01:34:55,088
and that has been
lost in the process.
1576
01:34:55,090 --> 01:34:56,890
Oh, my God,
I can't believe
1577
01:34:56,892 --> 01:34:58,224
I just hit
the wall
1578
01:34:58,226 --> 01:35:00,994
from two nights ago
just now.
1579
01:35:00,996 --> 01:35:02,662
Why don't you--?
Why don't you go--?
1580
01:35:02,664 --> 01:35:04,931
Just lay down.
We'll be quiet.
1581
01:35:04,933 --> 01:35:08,401
I'm working on
a masterpiece.
1582
01:35:12,074 --> 01:35:15,508
STEVE:
And you are planning
a bronchial sweep.
1583
01:35:15,510 --> 01:35:20,547
Yes. I'm going to look down
with a flexible scope
1584
01:35:20,549 --> 01:35:23,349
and suck out all that stuff
out of your lungs
1585
01:35:23,351 --> 01:35:27,620
so that hopefully that sticky
sensation that you're feeling
1586
01:35:27,622 --> 01:35:29,089
will be gone.
1587
01:35:29,091 --> 01:35:30,256
Great.
1588
01:35:30,258 --> 01:35:34,227
Well, I am anxious
but feel good with you.
1589
01:35:34,229 --> 01:35:36,296
Thank you.
I appreciate it, okay?
1590
01:35:36,298 --> 01:35:38,598
We're going to take good
care of you, I promise.
1591
01:35:38,600 --> 01:35:40,633
All right. I'm going
to head on down
1592
01:35:40,635 --> 01:35:43,203
and make sure everything's
set to go, okay, buddy?
1593
01:35:43,205 --> 01:35:45,038
I'll see you
in a little bit, okay?
1594
01:35:45,040 --> 01:35:47,373
I promise you we'll take
great care of him.
1595
01:36:21,109 --> 01:36:25,378
Sorry you have to deal
with this.
1596
01:36:27,449 --> 01:36:31,284
It's the White Flags,
Gleason. Go get 'em.
1597
01:36:33,822 --> 01:36:35,421
If for some reason
something happens
1598
01:36:35,423 --> 01:36:39,092
and you can't understand
him, come get us, okay?
1599
01:36:39,094 --> 01:36:40,727
We're staying
right here, baby.
1600
01:36:40,729 --> 01:36:43,062
I'll keep you
guys posted.
1601
01:36:43,064 --> 01:36:46,099
And we'll take good,
good care of him.
1602
01:36:54,910 --> 01:36:57,911
It's a hard time because
it's all of a sudden
1603
01:36:57,913 --> 01:36:59,979
like I don't want to think
about how sad it is.
1604
01:36:59,981 --> 01:37:02,482
I don't want to think about
what we're missing out on.
1605
01:37:02,484 --> 01:37:05,251
I don't want
to think about myself
because it's depressing.
1606
01:37:05,253 --> 01:37:07,987
I don't want to think
of these things.
1607
01:37:15,931 --> 01:37:17,831
It's finished.
What's that called?
1608
01:37:17,833 --> 01:37:19,199
That's beautiful.
1609
01:37:19,201 --> 01:37:21,434
It's called "Commotion
of Colors In Motion"?
1610
01:37:21,436 --> 01:37:22,769
Yes.
1611
01:37:22,771 --> 01:37:25,004
You have to give
your--
1612
01:37:25,006 --> 01:37:27,807
Ooh. Ooh. Okay.
1613
01:37:27,809 --> 01:37:29,409
And that's called
"emotoling"--
1614
01:37:29,411 --> 01:37:31,477
emotion doodling.
1615
01:37:31,479 --> 01:37:33,780
Emotoling.
Emotoling?
1616
01:37:33,782 --> 01:37:35,381
Emotoling.
1617
01:37:35,383 --> 01:37:36,583
Emotional doodling.
1618
01:37:36,585 --> 01:37:37,951
Emotionally doodling.
Okay.
1619
01:37:37,953 --> 01:37:39,185
I like that.
Oh.
1620
01:37:39,187 --> 01:37:42,121
The dilemma is, ahem,
1621
01:37:42,123 --> 01:37:43,523
obviously we want him to live,
1622
01:37:43,525 --> 01:37:45,792
and the longer he lives,
the harder it'll get.
1623
01:37:45,794 --> 01:37:49,028
But-- And-- And for her,
1624
01:37:49,030 --> 01:37:51,030
it's realizing that
the longer he lives,
1625
01:37:51,032 --> 01:37:52,899
the longer she has
to deal with this,
1626
01:37:52,901 --> 01:37:55,101
so it's just-- It's tough.
1627
01:38:04,880 --> 01:38:06,546
RIVERS:
What's that?
1628
01:38:06,548 --> 01:38:08,915
That's a-- That's
a trach and a vent.
1629
01:38:08,917 --> 01:38:10,783
Because guess--
Remember what Dad has--
1630
01:38:10,785 --> 01:38:14,888
Daddoos has? ALS.
Remember?
1631
01:38:39,981 --> 01:38:44,951
¶ Happy birthday, dear Rivers ¶
1632
01:38:44,953 --> 01:38:48,922
¶ Happy birthday to you ¶
1633
01:38:48,924 --> 01:38:51,291
Blow 'em out.
[APPLAUSE]
1634
01:38:51,293 --> 01:38:53,459
MICHEL:
You have to
blow harder, Rivers.
1635
01:38:55,497 --> 01:38:57,330
[CHATTER]
1636
01:38:58,667 --> 01:38:59,899
[CHEERING]
Last two.
1637
01:38:59,901 --> 01:39:01,100
All right,
Rivers.
1638
01:39:01,102 --> 01:39:02,669
It's not a yay yet.
1639
01:39:02,671 --> 01:39:04,103
He's a chicken.
1640
01:39:04,105 --> 01:39:05,305
[LAUGHTER, CHATTER]
1641
01:39:05,307 --> 01:39:07,006
I want you to
finish strong.
1642
01:39:07,008 --> 01:39:09,375
All right.
[CHEERING]
1643
01:39:09,377 --> 01:39:12,078
[CHATTER]
1644
01:39:28,163 --> 01:39:29,562
RIVERS: I got--
Rivers,
1645
01:39:29,564 --> 01:39:32,665
did you make any
new friends today?
1646
01:39:32,667 --> 01:39:36,502
No. I didn't...
1647
01:39:36,504 --> 01:39:39,605
Did you play
with Goren today, bro?
1648
01:39:39,607 --> 01:39:41,941
No!
He had fever.
1649
01:39:41,943 --> 01:39:43,443
[MICHEL CHUCKLING]
1650
01:39:43,445 --> 01:39:46,813
Can you count
to October 19th?
1651
01:39:46,815 --> 01:39:48,915
One, two,
One, two,
1652
01:39:48,917 --> 01:39:51,584
three, four--
Three.
1653
01:39:51,586 --> 01:39:56,356
Four, five, six, seven.
1654
01:39:56,358 --> 01:40:01,561
Oh, one, two, three, four,
five, six, seven.
1655
01:40:06,201 --> 01:40:10,436
My second reading
of "The Little Pea."
1656
01:40:11,639 --> 01:40:13,806
I'm excited for the day
1657
01:40:13,808 --> 01:40:19,012
when you are
teaching me things.
1658
01:40:19,014 --> 01:40:20,713
As a father, my goal
is for you to be--
1659
01:40:23,451 --> 01:40:27,587
To-- To teach you
to think for yourself,
1660
01:40:27,589 --> 01:40:31,190
and there's a downfall
to that
1661
01:40:31,192 --> 01:40:34,694
that eventually you'll
be thinking things
1662
01:40:34,696 --> 01:40:39,165
that are different
than things that I think.
1663
01:40:39,167 --> 01:40:41,667
In the weirdest way,
that's the goal,
1664
01:40:41,669 --> 01:40:46,139
but then you don't think
the things that I think,
1665
01:40:46,141 --> 01:40:51,978
and we have disagreements
or debates or, um,
1666
01:40:51,980 --> 01:40:54,113
differing opinions.
1667
01:40:54,115 --> 01:40:59,218
So my point is that I'm
saying now to you
1668
01:40:59,220 --> 01:41:02,522
that I am excited
for that day,
1669
01:41:02,524 --> 01:41:07,093
even if, when that day comes,
I'm frustrated.
1670
01:41:07,095 --> 01:41:09,896
Okay, tough guy,
so what kind of questions
1671
01:41:09,898 --> 01:41:12,365
are we going after here?
1672
01:41:12,367 --> 01:41:17,103
Four years ago, we had
a similar conservation.
1673
01:41:17,105 --> 01:41:20,907
What has been the most
challenging moment for you
1674
01:41:20,909 --> 01:41:23,643
since my diagnosis?
1675
01:41:23,645 --> 01:41:28,081
Uh, having to deal
with the day that you die.
1676
01:41:29,150 --> 01:41:33,286
Well, you asked me.
1677
01:41:33,288 --> 01:41:35,421
And I ask myself why--
1678
01:41:35,423 --> 01:41:38,157
You know, why did it have
to happen to Stephen?
1679
01:41:38,159 --> 01:41:39,792
But a simple answer for me
is, I mean,
1680
01:41:40,962 --> 01:41:42,395
it's the way
you played, Stephen.
1681
01:41:42,397 --> 01:41:44,464
That's why those coaches
loved you--
1682
01:41:44,466 --> 01:41:47,667
Because you were just
relentless.
1683
01:41:47,669 --> 01:41:50,736
We've had a couple
on-camera moments
1684
01:41:50,738 --> 01:41:53,806
talking about
our spiritual beliefs.
1685
01:41:53,808 --> 01:41:56,309
Do you feel at peace
about that?
1686
01:41:56,311 --> 01:41:58,177
I was talking to you
about some things,
1687
01:41:58,179 --> 01:41:59,812
and you were starting
to lose your voice,
1688
01:41:59,814 --> 01:42:02,248
and you says, "Dad,
don't worry about my soul.
1689
01:42:02,250 --> 01:42:04,016
My soul is saved."
1690
01:42:04,018 --> 01:42:06,853
And I don't think you could
speak that out of your heart
1691
01:42:06,855 --> 01:42:08,087
if you didn't really believe
1692
01:42:08,089 --> 01:42:10,123
that your soul was saved,
Stephen.
1693
01:42:10,125 --> 01:42:13,826
So I believe
your soul is saved.
1694
01:42:17,298 --> 01:42:19,565
If you could go back,
1695
01:42:19,567 --> 01:42:23,536
what would change about your
philosophy of fatherhood?
1696
01:42:26,107 --> 01:42:27,840
Oh, man. Uh,
probably being gentler.
1697
01:42:31,679 --> 01:42:37,049
Uh, I'm sure I could
have worked a little
smarter at things.
1698
01:42:37,051 --> 01:42:40,019
I think you did well.
1699
01:42:40,021 --> 01:42:42,355
Well, thank you.
1700
01:42:43,424 --> 01:42:44,924
I think you've taught Rivers
1701
01:42:44,926 --> 01:42:48,794
more about love and gentleness
and kindness at an early age
1702
01:42:48,796 --> 01:42:50,563
than I even knew about.
1703
01:42:52,433 --> 01:42:55,902
But it's pretty cool
to watch how you sing to him
1704
01:42:55,904 --> 01:42:58,471
on that, uh, computer
1705
01:42:58,473 --> 01:43:01,107
and get him in your legs
and he rolls around with you
1706
01:43:01,109 --> 01:43:03,676
and you say
bedtime stories to him,
1707
01:43:03,678 --> 01:43:07,113
and it's pretty awesome,
Stephen.
1708
01:43:07,115 --> 01:43:10,383
Rivers feels all of that
in his heart.
1709
01:43:15,757 --> 01:43:18,491
Some day he'll walk through
that Saints locker room,
1710
01:43:18,493 --> 01:43:20,159
and he'll see your picture
1711
01:43:20,161 --> 01:43:23,529
on that picture Hall of Fame
for the Saints,
1712
01:43:23,531 --> 01:43:25,398
and, you know,
he'll walk to the stadium
1713
01:43:25,400 --> 01:43:29,235
and see his dad's statue,
and, you know.
1714
01:43:31,873 --> 01:43:33,806
I just hope he doesn't feel
1715
01:43:33,808 --> 01:43:37,443
like he has to try
to accomplish as much as you.
1716
01:43:38,680 --> 01:43:40,446
All I know
is that you wouldn't put
1717
01:43:40,448 --> 01:43:42,548
that kind of pressure
on him.
1718
01:43:42,550 --> 01:43:47,320
RIVERS:
Go! One, two, three.
1719
01:43:48,556 --> 01:43:50,723
¶ A year from now ¶
1720
01:43:50,725 --> 01:43:53,960
¶ We'll all be gone ¶
1721
01:43:53,962 --> 01:43:56,128
Hold this. Come on.
1722
01:43:56,130 --> 01:43:58,698
All right, Dad,
let's do it.
1723
01:43:58,700 --> 01:44:01,000
¶ And they're
going to bed... ¶
1724
01:44:01,002 --> 01:44:02,201
[LAUGHTER]
1725
01:44:02,203 --> 01:44:04,070
Go! Say "Go, Daddoos, go."
1726
01:44:04,072 --> 01:44:05,304
Go, Daddoo, go!
1727
01:44:05,306 --> 01:44:07,473
¶ My friends will be gone ¶
1728
01:44:07,475 --> 01:44:08,941
I think his main purpose
now is,
1729
01:44:10,078 --> 01:44:11,877
you know,
being a dad for Rivers,
1730
01:44:11,879 --> 01:44:12,912
the best dad that he can be.
1731
01:44:12,914 --> 01:44:18,184
¶ Nothing is as it has been ¶
1732
01:44:18,186 --> 01:44:22,421
¶ And I miss your face
like hell ¶
1733
01:44:22,423 --> 01:44:26,225
I've lost a little bit
of the happiness and light
1734
01:44:26,227 --> 01:44:28,561
that was a big part
of my personality,
1735
01:44:28,563 --> 01:44:30,997
and I'm trying to find a place
where I can get that back
1736
01:44:30,999 --> 01:44:34,667
because I think it's important
because it's a big part of me.
1737
01:44:36,571 --> 01:44:39,138
I think of having a show
at some point.
1738
01:44:39,140 --> 01:44:41,107
That's way out
of my comfort zone,
1739
01:44:41,109 --> 01:44:43,542
and I'm, uh, I'm not
there quite yet.
1740
01:44:43,544 --> 01:44:46,045
Yeah. Being an artist
is just, like,
1741
01:44:46,047 --> 01:44:48,581
kind of complicated.
1742
01:44:48,583 --> 01:44:50,783
Luckily, I'm not an artist.
1743
01:44:52,120 --> 01:44:53,853
I think I'm better
than last year,
1744
01:44:53,855 --> 01:44:56,422
and so next year
might be even better.
1745
01:44:56,424 --> 01:44:59,392
But this is a motherfucker.
1746
01:45:04,265 --> 01:45:05,998
That's that.
I'm still pretty funny.
1747
01:45:06,901 --> 01:45:09,468
[VOCALIZING]
1748
01:45:14,676 --> 01:45:16,509
Go!
1749
01:45:20,315 --> 01:45:22,682
Whee!
Whoo!
1750
01:45:27,121 --> 01:45:29,955
WOMAN:
The Steve Gleason Act is
now the law of the land.
1751
01:45:29,957 --> 01:45:32,425
Word came down tonight
that President Obama
1752
01:45:32,427 --> 01:45:34,393
signed the bill
into law today.
1753
01:45:34,395 --> 01:45:37,096
The Steve Gleason Act
will give immediate relief
1754
01:45:37,098 --> 01:45:39,765
for patients who have
been denied access
1755
01:45:39,767 --> 01:45:41,400
to speech generating devices,
1756
01:45:41,402 --> 01:45:44,003
and it will ensure that
eye tracking technologies
1757
01:45:44,005 --> 01:45:46,505
are covered under
Medicare and Medicaid
1758
01:45:46,507 --> 01:45:48,107
for ALS patients.
1759
01:45:48,109 --> 01:45:51,310
¶ Rivers and roads ¶
1760
01:45:51,312 --> 01:45:53,245
¶ Rivers and roads ¶
1761
01:45:53,247 --> 01:45:56,449
We've gone from a family
member who has ALS
1762
01:45:56,451 --> 01:46:00,519
to now almost a
hero-slash-poster person
1763
01:46:00,521 --> 01:46:01,954
who started a movement,
1764
01:46:01,956 --> 01:46:04,757
and the movement
is its own entity now,
1765
01:46:04,759 --> 01:46:07,159
and it's strong, so it's
taken its own life,
1766
01:46:07,161 --> 01:46:11,130
and I think that's probably
as critical as anything.
1767
01:46:11,132 --> 01:46:13,099
¶ Rivers and roads... ¶
1768
01:46:13,101 --> 01:46:15,968
STEVE:
Fundraisers
and all that stuff--
1769
01:46:15,970 --> 01:46:18,471
Really none of that
is as important
1770
01:46:18,473 --> 01:46:21,073
as this right here.
1771
01:46:21,075 --> 01:46:22,708
That's all that matters
1772
01:46:22,710 --> 01:46:24,977
is me passing myself to you.
1773
01:46:24,979 --> 01:46:27,079
Here's a memory from
my high school years.
1774
01:46:28,049 --> 01:46:30,316
How to build a campfire.
1775
01:46:30,318 --> 01:46:31,751
Dating.
Obstacles.
1776
01:46:31,753 --> 01:46:35,821
Trying to give you
everything that I can.
1777
01:46:35,823 --> 01:46:38,657
Even if I'm not
present physically,
1778
01:46:38,659 --> 01:46:41,227
you'll have this,
1779
01:46:41,229 --> 01:46:42,762
and I feel so much better
1780
01:46:42,764 --> 01:46:47,299
when I just sit down
and share myself with you.
1781
01:46:47,301 --> 01:46:51,404
¶ Rivers till I reach you ¶
1782
01:46:51,406 --> 01:46:55,674
Because that's what dads do.
1783
01:46:55,676 --> 01:46:59,345
They pass stuff on,
the best of themselves,
1784
01:46:59,347 --> 01:47:01,881
to their kids.
1785
01:47:01,883 --> 01:47:08,387
¶ Rivers and roads,
rivers and roads ¶
1786
01:47:08,389 --> 01:47:12,925
¶ Rivers till I reach you ¶
1787
01:47:13,961 --> 01:47:17,897
¶ Rivers and roads ¶
1788
01:47:17,899 --> 01:47:19,799
Out.
1789
01:47:19,801 --> 01:47:24,970
¶ Rivers till I reach you ¶
1790
01:47:29,477 --> 01:47:31,410
All right.
1791
01:47:31,412 --> 01:47:33,679
Test, test, test.
1792
01:47:33,681 --> 01:47:35,981
Test.
1793
01:47:35,983 --> 01:47:37,650
Rolling.
1794
01:47:37,652 --> 01:47:40,085
It's right in the middle
of the state--
1795
01:47:41,522 --> 01:47:43,522
That's your mom, dude.
1796
01:47:43,524 --> 01:47:46,492
What the hell.
That was awesome.
1797
01:47:46,494 --> 01:47:48,561
She's a piece of work,
I tell you what.
1798
01:47:48,563 --> 01:47:50,663
When I feel something
strong enough,
1799
01:47:50,665 --> 01:47:53,132
it takes over my head,
and I had to just say it.
1800
01:47:53,134 --> 01:47:57,670
I had to say "Steve, I had
a dream that I liked you,
1801
01:47:57,672 --> 01:47:59,772
and I think--
I think that I like you."
1802
01:47:59,774 --> 01:48:02,908
¶ ...for hundreds of miles ¶
1803
01:48:02,910 --> 01:48:05,411
Boo!
1804
01:48:05,413 --> 01:48:07,913
This is me giving you a hug.
1805
01:48:07,915 --> 01:48:09,582
Just...
1806
01:48:11,686 --> 01:48:14,653
Making these videos is my hug.
1807
01:48:14,655 --> 01:48:18,724
¶ ...down on his knees ¶
1808
01:48:26,067 --> 01:48:30,769
¶ Oh, life came crashing
unofficially down... ¶
1809
01:48:30,771 --> 01:48:35,508
Unfortunately,
this is real life.
1810
01:48:35,510 --> 01:48:39,111
It's not a movie, so,
1811
01:48:39,113 --> 01:48:42,348
I'm trying to make it as
hunky dory as possible.
1812
01:48:42,350 --> 01:48:46,151
But I think sometimes
real life gets in the way.
1813
01:48:46,153 --> 01:48:49,255
[VOCALIZING]
1814
01:49:13,447 --> 01:49:15,748
[SCREAMING]
1815
01:49:16,717 --> 01:49:18,717
My thoughts for you
1816
01:49:18,719 --> 01:49:22,855
and tattoos'
remembrance is this.
1817
01:49:22,857 --> 01:49:25,858
Do not get it of
your girlfriend's name.
1818
01:49:25,860 --> 01:49:27,993
Or your wife,
for that matter.
1819
01:49:27,995 --> 01:49:30,429
Hey.
1820
01:49:30,431 --> 01:49:32,565
Or your wife.
But your mom's,
1821
01:49:32,567 --> 01:49:35,167
you can get one
of your mom's if you want to.
1822
01:49:38,940 --> 01:49:40,940
And I do believe
that in five years
1823
01:49:40,942 --> 01:49:44,944
I'll look back on this video
and say "Wow,
1824
01:49:44,946 --> 01:49:48,280
"that was the beginning
of, you know, this journey
1825
01:49:48,282 --> 01:49:51,951
that has turned out so much
for the better in my life."
1826
01:49:54,855 --> 01:49:57,056
¶ And he still
gives his love ¶
1827
01:49:57,058 --> 01:49:59,491
¶ He just gives it away ¶
1828
01:49:59,493 --> 01:50:01,961
¶ The love he receives ¶
1829
01:50:01,963 --> 01:50:08,133
¶ Is the love that is saved ¶
1830
01:50:08,135 --> 01:50:09,735
I just want to say
1831
01:50:09,737 --> 01:50:11,870
I feel like I'm
exploding on the inside.
1832
01:50:11,872 --> 01:50:14,540
I love you so much, man,
1833
01:50:14,542 --> 01:50:18,677
and, um,
that's a great thing,
1834
01:50:18,679 --> 01:50:20,813
and I hope, uh,
1835
01:50:20,815 --> 01:50:22,314
you love me
as much as I love you,
1836
01:50:23,584 --> 01:50:24,917
but it's impossible.
1837
01:50:24,919 --> 01:50:26,518
I think even better is I hope
1838
01:50:26,520 --> 01:50:28,854
you love your children
1839
01:50:28,856 --> 01:50:33,025
as much as I love you.